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Re: if anyone can help me about the bladder problems?
From: Julie (anonymous@obgyn.net)
Fri Aug 29 16:07:47 2003
Jen,
Hi im sorry you are going through all this! To me it sounds like you
need to get a 2nd oppinion hun! Endometriosis can also grow on or in
your bowels it can grow on your lungs ,it can grow on your bladder!
Nothing cures endometriosis hun, i only know from experience the
treatments(meds and surgery) all that does is suppres the pain for
awhile! I really wish they would find a cure for this disease but as of
right now they have not! And as far as bladder problems go there is a
bladder disease that i have noticed from al;ot of endo groups im in that
intercitial cystitis (misppelled) sorry or its also abreviated IC runs
in alot of endometriosis patients ! Ok and also as far as lap surgeries
the dr may burn or excise(cut) the implants(endo) out but they do grow
back! Hysterectomy surgery does not totally get rid of endo pain for
good also! Jen if you have any questions or just want to talk you can
email me brat7572@yahoo.com or smileybrat1972@yahoo.com or i also have
yahoo messenger my Id is smileybrat1972! i hope i answered alot of your
questions and you are not alonw with this horrible disease!
Hope you get feeling better!
Julie Burleson
At Fri, 29 Aug 2003, JEN wrote:
>
>I was just wondering do bladder problems and endo go hand in hand? I
>have always had bladder or rather Urinary Tract Infections every since I
>was 18 and now I am 33. I had my first lap done almost 3 weeks ago and
>I am not on any medication but I always feel like I have a bladder
>infection. I feel like I have to go to the bathroom and then only a
>little comes out and it hurts really bad. Also my urine since my
>surgery (not to be gross) is really dark and has a strong smell. So is
>it common to have bladder problems with endo? I just wonder because I
>have read how some of you have bladder problems because of the
>medication you are on and my doctor said that if I don't get better that
>he wants me to go on medication for endo. Also, I don't understand if I
>had the lap and he burned all of the endo off of me why would I still
>have problems? He also told me that he cut the nerves that send the pain
>to your brain so that should help stop the pain but the nerves can and
>will heal and then the pain will come back. I feel really stupid but I
>just don't understand if they took it all out of you why I could still
>possibly have pain does it grow back that fast? Does anyone know? OR is
>it possible that he couldn't get all of it out of me. At least I do
>understand that this is obviously something I will have to deal with for
>the rest of my life. Another thing I was told that if you had a
>hystorectomy sorry for the spelling:) that is the only way to get rid of
>it totally well my cousin had that done and now 8 years later she is
>having problems again I thought that endo only grew on the female
>reprodutive organs?? Is that wrong too?? Hopefully someone has some
>answers for my questions and hopefully they aren't too stupid of
>questions. I just wish doctors would speak in english when they told
>you things instead of those huge words that make no sense to me. Thanks
>again Jen
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