ENDO Messages for August, 2003: Re: Do any of you experience . . . . .

Re: Do any of you experience . . . . .

From: Melissa (anonymous@obgyn.net)
Fri Aug 29 14:21:48 2003

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In reply to: Katrina: "Do any of you experience . . . . ."

Hi Katrina.

I had menstrual pain only during my teens and early 20's. By the time I was about to take the Lupron shot (age 26) and had had one laparoscopy, the pain was pretty much constant, only offering relief the week after my period. Having intercourse would blow that week right to hell. I think that because of the scarring and also the location of some endo spots, pain can happen at any time. I had some on my bladder which hurt while it expanded. Oh and soy and coffee really aggrevated it.

Just an FYI, if you ever take Lupron, read all the posts about the negatives first (there will be a lot). I'm on week 12 of the 3rd shot and have had debilitating joint pain since that shot. I'm on steroids just so I can function. AND I've been on estrodial addback + progesterone. Just a word of warning. AND since we've upped the estrodial again, I'm getting mild endo pain. Excision seems to be the best way to go, but only with an experienced Endo surgeon. If yours is just offering pain pills, he/she is masking the symptoms and doing nothing to stop the progession of this painful disease. I think you are right to find another doctor.

More advice than you asked for but good luck and take care, Melissa

At Fri, 29 Aug 2003, Katrina wrote: >
>Do any of you ladies with endometriosis experience pelvic pain at times
>other than when you're having your period?
>
>I'm asking because I'm having terrible pain during other times, and my
>doctor is being very casual about the whole thing. Just handing out
>pain meds. I know something is not right and I'm trying to find another
>doc.
>Any feedback you have would be very appreciated.
>Thank you.
>
>--
>Katrina
>

Next message: Julie: "Re: if anyone can help me about the bladder problems?"
Previous message: Tina: "After 10yrs IBS/Endo finally help"
In reply to: Katrina: "Do any of you experience . . . . ."

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