ENDO Messages for August, 2003: Re: (Wendy) Long message

Re: (Wendy) Long message

From: amanda (anonymous@obgyn.net)
Fri Aug 22 18:38:54 2003

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At Wed, 1 Nov 2000, Marlene wrote: >
>Hi Wendy:
>
>I can understand your gyn wanting to do med therapy, although I have
>heard a lot of women's experiences with Lurpon have not been pleasant. I
>think it is a good idea to request the lap that way she can truley see
>what's going on inside of you...
>
>I did feel very emotional when I was on the depo provera, cried at the
>drop of a hat, my Doc put me on effexor at the time and it helped with
>the emotional part. The depo worked for me for a bout 8 months...that
>was really wonderful till it stopped working.
>
>I have had quite a few "pain attacks". The ones I experienced before my
>hysterectomy were central abdominal, a lot of low pressure and a
>stretching and pulling censation internally above my vagina. In the
>spring of this year my pain and the attacks seemed to be more on my left
>side and felt like burning sensation it also radiated to my lower back
>on the left side. Since the removal of my ovaries, my pain is everday
>day and is central abdominal and low left and right sides, it seems to
>take turns.....it's either left and right and then abdominal or all 3
>spots at once. I also experience chills and extreme bloating....most
>nights I look like I am 5 months pregnant.
>
>I think the thing to keep in mind is that endo affects us all
>differently and the pain we experience. Be prepared to undergo some
>testing to rule out other conditions....you will feel like a lab
>experiment but having the tests will ease your mind that you don't have
>any problems in what they are testing for or they may find that your
>pain is connected to something other than endo.
>
>Sorry for this long message, but I hope what I've shared with you helps
>you. If you want to email me privately, please do *smiles*.
>
>hugssss and take care
>Marlene
>
>At Tue, 31 Oct 2000, wendy wrote:
>>
>>Marlene,
>>I have not had a lap. I had an endoscopy to rule out Gerd and ulcers. I
>>have also had an abdominal and pelvic ultrasound to check for other
>>things. I started having the spasming today in my right side. This is
>>starting after I have ended my cycle. I don't have any idea if my gyn
>>is an endo specialist or not. She stated that we would try medical
>>therapy first before a lap would be done. bc's, depo-provera, lupron. I
>>think that before I start any injectibles that I will request a lap. I
>>also found out that some people in my family have tried depo-provera and
>>have become very depressed. With your pain attack that you experienced
>>was it just on one side. Did you feel like something was pulling your
>>insides all around. In my opinon I really don't think I have IBS.
>>
>>At Tue, 31 Oct 2000, Marlene wrote:
>>>
>>>Hi Wendy:
>>>
>>>Sorry to hear of your pain and that your now getting miagraines.
>>>
>>>When you mentioned your endoscopy do you mean a laporoscopy, cause that
>>>is really the only way they can see the endo. I hope your gyne is an
>>>endo specialist. With me I think that if I had seen one 2 years ago I
>>>would have been diagnosed earlier and maybe would have had my organs
>>>left in tact.
>>>
>>>It's good that you are researching endo and IBS it's your body and you
>>>should feel informed about what's happening to it and if your faced with
>>>difficult decisions about surgery you'll be going into it with open eyes
>>>so to speak.
>>>
>>>My thoughts are with you!!!
>>>
>>>Take Care and hugsss
>>>Marlene
>>>
>>>At Tue, 31 Oct 2000, wendy wrote:
>>>>
>>>>I just read your story. I have that gnawing pain on my right side and
>>>>it feels like someone is ripping out my insides. I didn't start really
>>>>feeling sick until about 4 months ago. I started having stomach
>>>>problems that were similar to GERD at least I thought. My endoscopy was
>>>>normal. I had been having a lot of right sided lower abdominal pain(
>>>>almost like contractions, like when you are in labor).. It would hurt
>>>>to sit or stand. At times I felt like my whole side was stiff. I
>>>>noticed a pattern of this happening every three to 4 weeks. I spoke
>>>>with my GI doctor after the endoscopy and stated to him what was
>>>>happening and he stated that he suspects IBS and kinda of chuckled and
>>>>stated that I might have endo. I begin to check everything out on the
>>>>internet on both IBS and Endo. I made an appointment to see the GYN and
>>>>informed her that there is endo in my family. The last cycle I had
>>>>before this one I was in the most pain. When I saw my Gyn she stated
>>>>that I have dysmenorrhea and also went over the treatment plan for endo.
>>>>I started on Ortho Cyclen(prescribed this form of bc because of my
>>>>migraines. The next cycle came and I still had the pelvic pain and
>>>>heavy period and only a little bit of the right sided pain. But my
>>>>migraines were worse than ever. I am now starting Mircette.
>>>>
>>>>At Mon, 30 Oct 2000, Marlene wrote:
>>>>
>>>>>Hi Angie:
>>>>>
>>>>>Sorry to hear that your husband isn't being supportive with you right
>>>>>now.....this disease affects not only us but the people around us that
>>>>>love us. Unfortunately as much as our loved ones want to be
>>>>>understanding...they truley don't know what we go through....
>>>>>
>>>>>I don't know how long you have had endo but I am wondering if he has
>>>>>read anything about it....there are some informative sites and a lot of
>>>>>personal pages that include other women's stories. Perhaps if he read
>>>>>some of these stories it would broaden his understanding and realize how
>>>>>hard it is for endo suffers, aside from the pain we deal with....the
>>>>>loss of the quality of our lives, the inability to do what we use to do
>>>>>or want to do.
>>>>>
>>>>>Belle's video can be quite helpful too.....after viewing it he will see
>>>>>the other women being interviewed probably say the same things you have
>>>>>said to him....Know that is what happened in my case.
>>>>>
>>>>>If you would like you can let him read "my story"....I don't know if it
>>>>>will help..but it just might....to know that other women are
>>>>>experiencing the same thing. When I was first diagnosed....only in June
>>>>>of this year I showed my husband many personal stories I had found on
>>>>>the net.
>>>>>
>>>>>http://homepages.go.com/~marsbar37/endostory.html
>>>>>
>>>>>Big warm hugss to you and know your not alone!!!
>>>>>
>>>>>--
>>>>>Marlene
>>>>>
>>>>>At Mon, 30 Oct 2000, Angela wrote:
>>>>>>
>>>>>>Hello,
>>>>>>I really need to vent right NOW!!! I really just need a really good cry. I
>>>>>>am so upset with my husband right now.
>>>>>>Well I went to my Dr. appt. today! The doctor wants me to continue taking
>>>>>>the bcp's for 2 more months so Dec. 7th and am going to see her and she is
>>>>>>going to decide whether to do another lap or not. Anyway I told my husband
>>>>>>that and he said its hard for him to take time off so we will NEED to
>>>>>>schedule it according to when he can take time off. Also 10 min. ago I
>>>>>>talked to him and he wanted to go running with me tonight and I said I dont
>>>>>>know whether I am running tonight because I am not feeling well today (
>>>>>>nothing new ) and he says he doesnt have time for this. My husband does not
>>>>>>know what I am going through and it really pisses me off. Its not a *&&&*&&
>>>>>>joke I need this DAMN surgery. I am sick of being tossed around by the
>>>>>>doctor, oh take this pill, no take this pill oh if that dont work take this
>>>>>>pill, and it that doesnt work keep a damn log!!!! Shit!!! I dont have time
>>>>>>for this I have a 7 1/2 month old that I like her to be happy 24 hours a
>>>>>>day!!! I can't be sick anymore. And I will not schedule the operation around
>>>>>>my husbands time, my parents will have to take care of my daughter. My
>>>>>>husband doesnt want to believe that I have a disease. He is being very
>>>>>>selfish. Who cares how I am feeling as long as he is happy, thats all that
>>>>>>really matters. angie
>>>>>

--
hi, i am 17 years old and for
some reason tonight i have been
 back ache at the lower left hand
side of my back and i dont know what
it is coz i have never had back ache
 before, and i doubt i would be pregnant,
 well i have had unprotected sex for the
last 4 nights but he has pulled out before
 he has cum, so i doubt i will be pregnant.
 i hope you will send me a message back and
 let me know if you know.
 thank you,
 amanda hetherington

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