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Re: aggressive angiomyxomaFrom: anonymous (anonymous@obgyn.net)Fri Aug 15 20:49:00 2003
At Fri, 18 Apr 2003, melinda wrote: > >At Fri, 15 Mar 2002, Danielle wrote: >> >>At Sat, 28 Jul 2001, Paula wrote: >>> >>>I was diagnosed 3 weeks ago as having this cancer. The tumor was found >>>during my hysterectomy on June 11, 2001. >>>I'd love to hear from others with this cancer, I fear the mutilation of >>>the "radical hysterectomy" scheduled in 2 weeks to make sure the tumor >>>has been completely excised. I'm starting to wonder if I should opt to >>>not have surgery. >>>No other treatment was suggested. >>> >>>At Sat, 21 Apr 2001, anonymous@obgyn.net wrote: >>>> >>>>to carolyn who has this rare tumour...my sister also suffers from this >>>>please reply as to how you are now are you in pain as my sister is daily >>>>what treatment are you taking...would love to hear from you or anyone >>>>else suffering from same...many thanks Geraldine >> >>Hello to all who suffer from aggressive angioxyoma, my mother has also >>been diagnosed with this growth tumor. She has already had a total >>hysterectomy in February 2000. There is a new growth now, March 2002, >>and we are looking for other options to surgery, and also to speak with >>others with this growth. Any help would be greatly appreciated. > >I've been diagnosed with angiomyxoma in 1994. I had surgery to remove >what they could but it came back again. It was not malignant. I have >been taking megace for the tumor for the last 8years & it is keeping it >under control. My doctor feels surgery is really not a good option >because it is so aggressive >& will only come back again. The only thing with the megace is that you >gain alot of weight because its a hormone & also an appetite stimulant & >it's hard to diet when you're on it. >> >>-- >>Danielle C. Varney >> I am a 59 yr old male. April 2001 I had a growth removed from my prostate. I t turned out to be aggressive angiomyxoma. The surgon wanted to remove my entire prostate. After consulting with several Doctors and doing my own research I refused. I at first had an MRI which my first Dr thought "might" show more growth he took about 9 biopsys which all turned out negative. I found another Dr who directed me to have a trans rectal MRI which showed nothing. Several such MRIs later I have had no reoccurance but will have an annual trans rectal for about ten years.
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