ENDO Messages for August, 2003: Re: adhesions endo --please help if poss.

Re: adhesions endo --please help if poss.

From: Joyce (anonymous@obgyn.net)
Mon Aug 11 19:49:45 2003

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Hi lil,

I also have flank pain after bowel movements. And not only pain, but extreme weakness. I have to lie down for a bit afterwards. I've had adhesions before, probably from ovarian cysts or endo, that were lysed. I have pulling sensation also in my back when I bend to the side. It's all on the left side. The best days I have are days that I don't have a bowel movement. But the longer I go without having one, the more it hurts afterwards when I do. It burns and aches like a deep bruise or something. It makes me feel horrible. I'm often late for work due to this. It will take about 2-3 hours before I start feeling any better. I've had a colonoscopy which was ok except for an IBS diagnosis, of course, and a tight area that he had a hard time getting the scope through. The procedure hurt really bad while he was trying. I've had 4 laprascopic surgeries, the last one being a hysterectomy. I was hoping all pain would be gone after that, which the Pelvic Congestion I had was but this back pain that gets worse with Bowel Movement persists. The surgery did not help it at all. I had asked the surgeon to check for scar tissue/adhesions in that area, but I have the video of the surgery, and he did not check. Now I'm considering another surgery to have this checked. I've tried living with this, but it really affects my quality of life. I love to exercise, but it makes the pain worse. There's not much that doesn't make it worse. Laying on the couch all day is about the only thing. I've been sitting here doing research on the net about adhesions and endometriosis and Women's Health Care in general, and it's so depressing how poorly women with these types of problems gets treated by the medical field and how they just throw us from doctor to doctor, almost like just trying to get rid of us. It makes me so, so very mad!!!! Anyway, I hope you are doing better and my prayers are with everyone having to deal with these things.... Joyce

At Tue, 29 Jul 2003, lil wrote: >
>i have alot of bowel and lower back pain. have had lots of adhesions
>and endo. i had laparascopic surgery to remove. the bowel and lower
>lumbar problems had gotten a little better but now have returned in full
>force. i have heard that the space behind the kidneys(can't remember
>how to pronounce that) where the muscles and nerves are can also have
>the endoandadhesions but cannot be gotten to by laparascopic surgery
>only open surgery. i keep having so many problems from several pelvic
>surgerys always having lots of adhesions removed and lots stuck to my
>bowels and such. i also have a stretching tightning pulling feeling
>from my left buttock to my lumbar area, hard to bend forward w/o pain
>discomfort and burning again after bowel movements which makes my lumbar
>and part of my spine feel inflamed. i have had so many tests and seen
>so many doctors and none can figure this problem out. i am wondering if
>possibly the endo and adhesions have settled on the nerves or muscles
>behind the kidneys where it can only be gotten to by open surgery. i am
>sofrustrated anddepressed because of all the surgeries i have had and
>still its getting worse. has anyone ever had these problems. can this
>only be checkedby open surgery and would this be an abdominal or bikini
>linecut. i am running out of options and being misdianosed. most
>doctors don't understand endo and adhesions and the problems they can
>cause. i am now being told to exercise more which i have done to no
>avail. i am prob. going to again go out of state to an endo expert.
>this is bringing on also all sorts of bizarre effects on mybody. i know
>if its on the bowelormuscle weird symptoms can occur.

--
Joyce

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