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Re: Valuable Endo Help
From: Angela (anonymous@obgyn.net)
Sat Aug 9 15:44:35 2003
Wong,
I don't know of a specialist in that area, but you can call the endo
association's 800 number (located on their website at
http://www.endometriosisassn.org) and they will locate a doctor in your area.
That's what I did. Also, you can find a chiropractor in your area by
going to chiroplanet.com Good luck to you!
Angela
At Fri, 8 Aug 2003, Wong wrote:
>
>Hi,
>your story is very inspiring-I live in the bay area in CA,do you know of
>endo specialist here?
>
>Thank you
>W
>
>At Fri, 8 Aug 2003, Angela wrote:
>>
>>I would also like to share an inspiring and hopeful story about coping
>>with endo. I have had all of the surgeries, all of the medicines, been
>>diagnosed with irritable bowel, interstitial cystitis, etc...The only
>>thing that has been able to help me is chiropractic. I have been seeing
>>a chiropractor about 3 times each week for 6 weeks and I feel remarkably
>>better! When I do get pains, it is bearable and I can control it with
>>over the counter medications. I used to pop a Darvocet or Ultram every
>>day, but now I don't! It took me a few visits to really see results, but
>>I am so much happier and can function daily like a normal person! I just
>>wanted to share my inspiration with all of you. GOod luck and make it a
>>terrific day!
>>
>>>>>I just wanted to provide this forum with some valuable information. I
>>>>>have done tremendous research and traveled the country in search of the
>>>>>best resources to cope with endometriosis. I recently underwent surgery
>>>>>with Dr. John Rock, former president of the World Endometriosis
>>>>>Society. He is a leading expert and innovator in the research and
>>>>>treatment of endometriosis. He performed a laparotomy on me in October
>>>>>2002 and the results have already been remarkable. I am finally
>>>>>pain-free. I am 23 years old and I have been suffering from
>>>>>endometriosis since my first menstrual period at age 11. My younger
>>>>>sister was diagnosed with endometriosis at age 13. She and I have been
>>>>>treated by the most prestigious medical facilities and doctors in this
>>>>>country. I have visited the Mayo Clinic in Rochester, Minnesota, the
>>>>>University of Michigan Hospital in Ann Arbor, Michigan, Dr. Marc Laufer
>>>>>at Boston Children's Hospital in Boston, Massachusetts and with doctors
>>>>>such as Dr. Rock at Emory University in Atlanta, Georgia. I have also
>>>>>consulted with Dr. David Redwine in Bend, Oregon and gynecological
>>>>>specialists at the University of Miami Medical Center as well. I have
>>>>>done tremendous research in medical journals and consulted with numerous
>>>>>other physicians nationwide. It saddens me to hear of the countless
>>>>>surgeries that you all have undergone and the fact that doctors do not
>>>>>know how to properly treat endometriosis. I have been in your shoes.
>>>>>But now with the expertise of Dr. John Rock and his team of
>>>>>gynecological specialists at Emory University, I am well now and I am
>>>>>off all hormones and prescription drugs for the first time in 12 years.
>>>>>Since I was 11, I have been plagued with cramps, lower back pain, cystic
>>>>>ovaries, gastrointestinal and urological symptoms due to the
>>>>>endometriosis. There is no cure for endometriosis. But there is help
>>>>>out there. Dr. Rock has taught me that often times, as with my case,
>>>>>laparoscopic surgery is not thorough enough in exploring and treating
>>>>>endometriosis. Often times, the endometriosis is deep within the pelvic
>>>>>cavity, it is in the retro-peritoneum. The laparoscope is unable to see
>>>>>all of this deep endometriosis. That is why a laparotomy is often
>>>>>necessary. I was first diagnosed and treated laparoscopically in 1999
>>>>>but my symptoms did not improve, even with continuous birth control
>>>>>usage to suppress my periods. I have learned that there is a type of
>>>>>endometriosis that one is born with, like myself and my sister. The
>>>>>pain is present before one's first menstruation or at the onset of
>>>>>menstruation. This type of endometriosi is congenital-one is born with
>>>>>the disease. This is the deep disease that needs to be removed by
>>>>>laparotomy. I have also learned that hormones do not always suppress
>>>>>the growth of endometriosis. Often times, hormones are only implemented
>>>>>to suppress the symptoms, not the growth. In addition to excising, not
>>>>>lasering or burning the endometriosis, Dr. Rock and his colleagues at
>>>>>Emory also perform a procedure called a presacral neurectomy to combat
>>>>>the neurological pathways that transmit pelvic pain. It is important
>>>>>that young girls and women, like yourselves, realize that painful,
>>>>>debilitating periods are not normal. It is very important that you find
>>>>>the right specialists. There are too many myths and misconceptions out
>>>>>there regrading endometriosis. You owe it to yourselves to find the
>>>>>best healthcare providers. I consulted with very reputable specialists
>>>>>in my hometown of Miami, Florida but I was misdiagnosed for nine years
>>>>>and not treated comprehensively enough with laparoscopic surgery. I
>>>>>urge those of you out there, both young and old, to find the best
>>>>>doctors. Endometriosis can only be diagnosed through exploratory
>>>>>surgery such as laparoscopy and laparotomy. It is not necessary to have
>>>>>multiple surgeries and radical surgery such as hysterectomy. My
>>>>>reproductive organs have been spared because I found the best resources
>>>>>and the best doctors. I have tried everything from hormones to
>>>>>acupuncture. These treatments only mask the pain-they do not rid you of
>>>>>the disease. If you have any questions, please contact me via e-mail
>>>>>and I will get you in touch with the best endometriosis specialists. It
>>>>>is important that you take an active role in your health-your quality of
>>>>>life and your fertility are at stake.
>>>
>>>--
>>>My name is alex newton and I am trying to find the best endometriosis specialist for my girlfriend. She has had the surgery by Dr.Rock but is now experiencing a reoccurance. The doctor who took his place has said she will more than likely have to have a hysterectomy. She is going to try a strong hormone therapy first to see if this will help. We are wanting to start a family and we would like to explore all of our options before we have to settle on this procedure. Any help you could give me would be greatly appreciated.
>>>
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