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Re: Valuable Endometriosis InformationFrom: alex (anonymous@obgyn.net)Fri Aug 8 06:37:42 2003
At Mon, 20 Jan 2003, Anonymo wrote: > >Risa -- thank you so much for sharing your experience. > >Can I ask you in the future, though, to try to use paragraphs because >your message is very difficult to read. I found it too painful for my >eyes and had to stop, even though I was interested in what you were >saying. > >Thanks! :) > >At Mon, 20 Jan 2003, Risa wrote: >> >>I just wanted to provide this forum with some valuable information. I >>have done tremendous research and traveled the country in search of the >>best resources to cope with endometriosis. I recently underwent surgery >>with Dr. John Rock, former president of the World Endometriosis >>Society. He is a leading expert and innovator in the research and >>treatment of endometriosis. He performed a laparotomy on me in October >>2002 and the results have already been remarkable. I am finally >>pain-free. I am 23 years old and I have been suffering from >>endometriosis since my first menstrual period at age 11. My younger >>sister was diagnosed with endometriosis at age 13. She and I have been >>treated by the most prestigious medical facilities and doctors in this >>country. I have visited the Mayo Clinic in Rochester, Minnesota, the >>University of Michigan Hospital in Ann Arbor, Michigan, Dr. Marc Laufer >>at Boston Children's Hospital in Boston, Massachusetts and with doctors >>such as Dr. Rock at Emory University in Atlanta, Georgia. I have also >>consulted with Dr. David Redwine in Bend, Oregon and gynecological >>specialists at the University of Miami Medical Center as well. I have >>done tremendous research in medical journals and consulted with numerous >>other physicians nationwide. It saddens me to hear of the countless >>surgeries that you all have undergone and the fact that doctors do not >>know how to properly treat endometriosis. I have been in your shoes. >>But now with the expertise of Dr. John Rock and his team of >>gynecological specialists at Emory University, I am well now and I am >>off all hormones and prescription drugs for the first time in 12 years. >>Since I was 11, I have been plagued with cramps, lower back pain, cystic >>ovaries, gastrointestinal and urological symptoms due to the >>endometriosis. There is no cure for endometriosis. But there is help >>out there. Dr. Rock has taught me that often times, as with my case, >>laparoscopic surgery is not thorough enough in exploring and treating >>endometriosis. Often times, the endometriosis is deep within the pelvic >>cavity, it is in the retro-peritoneum. The laparoscope is unable to see >>all of this deep endometriosis. That is why a laparotomy is often >>necessary. I was first diagnosed and treated laparoscopically in 1999 >>but my symptoms did not improve, even with continuous birth control >>usage to suppress my periods. I have learned that there is a type of >>endometriosis that one is born with, like myself and my sister. The >>pain is present before one's first menstruation or at the onset of >>menstruation. This type of endometriosi is congenital-one is born with >>the disease. This is the deep disease that needs to be removed by >>laparotomy. I have also learned that hormones do not always suppress >>the growth of endometriosis. Often times, hormones are only implemented >>to suppress the symptoms, not the growth. In addition to excising, not >>lasering or burning the endometriosis, Dr. Rock and his colleagues at >>Emory also perform a procedure called a presacral neurectomy to combat >>the neurological pathways that transmit pelvic pain. It is important >>that young girls and women, like yourselves, realize that painful, >>debilitating periods are not normal. It is very important that you find >>the right specialists. There are too many myths and misconceptions out >>there regrading endometriosis. You owe it to yourselves to find the >>best healthcare providers. I consulted with very reputable specialists >>in my hometown of Miami, Florida but I was misdiagnosed for nine years >>and not treated comprehensively enough with laparoscopic surgery. I >>urge those of you out there, both young and old, to find the best >>doctors. Endometriosis can only be diagnosed through exploratory >>surgery such as laparoscopy and laparotomy. It is not necessary to have >>multiple surgeries and radical surgery such as hysterectomy. My >>reproductive organs have been spared because I found the best resources >>and the best doctors. I have tried everything from hormones to >>acupuncture. These treatments only mask the pain-they do not rid you of >>the disease. If you have any questions, please contact me via e-mail >>and I will get you in touch with the best endometriosis specialists. It >>is important that you take an active role in your health-your quality of >>life and your fertility are at stake.
-- My name is alex newton and I am trying to find the best endometriosis specialist for my girlfriend. She has had the surgery by Dr.Rock but is now experiencing a reoccurance. The doctor who took his place has said she will more than likely have to have a hysterectomy. She is going to try a strong hormone therapy first to see if this will help. We are wanting to start a family and we would like to explore all of our options before we have to settle on this procedure. Any help you could give me would be greatly appreciated.
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