ENDO Messages for August, 2003: Re: adhesions endo --please help if poss.

Re: adhesions endo --please help if poss.

From: Michelle (anonymous@obgyn.net)
Sat Aug 2 08:49:00 2003

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In reply to: A: "Re: adhesions endo --please help if poss."

Dear A, I took Aygestin while taking Lupron Depot shots for 4 months. It never stopped my period for 3 1/2 months. It like alot other meds don't help everyone. Depo Provera is helping me more than the Lupron, Yasmin, Orthotricyclen, Orthocyclen, or Mircette ever did. I've been battling this disease for 14 months now. Unfortunately this runs in my family on my mom's father's side along w/ PCOS which I also have. Hopefully one day soon they will find a cure for all these disorders and no other woman will have to go through what we have had to endure. Good luck and God bless to all our fellow sufferers. Michelle

A <anonymous@obgyn.net> wrote: Hello,

I am sorry that you are suffering so badly from this disease. I can't really offer any info other than to tell you to ask your doctor to prescribe Aygestin/Norethindrone. This drug stops your period COMPLETELY,which slows down the endo/adhesion growth process. Some women have different reactions to the drug like depression. I myself love it and have no symptoms at all. I am still in a hell of a lot of pain, however. Good luck

At Tue, 29 Jul 2003, lil wrote: >
>i have alot of bowel and lower back pain. have had lots of adhesions
>and endo. i had laparascopic surgery to remove. the bowel and lower
>lumbar problems had gotten a little better but now have returned in full
>force. i have heard that the space behind the kidneys(can't remember
>how to pronounce that) where the muscles and nerves are can also have
>the endoandadhesions but cannot be gotten to by laparascopic surgery
>only open surgery. i keep having so many problems from several pelvic
>surgerys always having lots of adhesions removed and lots stuck to my
>bowels and such. i also have a stretching tightning pulling feeling
>from my left buttock to my lumbar area, hard to bend forward w/o pain
>discomfort and burning again after bowel movements which makes my lumbar
>and part of my spine feel inflamed. i have had so many tests and seen
>so many doctors and none can figure this problem out. i am wondering if
>possibly the endo and adhesions have settled on the nerves or muscles
>behind the kidneys where it can only be gotten to by open surgery. i am
>sofrustrated anddepressed because of all the surgeries i have had and
>still its getting worse. has anyone ever had these problems. can this
>only be checkedby open surgery and would this be an abdominal or bikini
>linecut. i am running out of options and being misdianosed. most
>doctors don't understand endo and adhesions and the problems they can
>cause. i am now being told to exercise more which i have done to no
>avail. i am prob. going to again go out of state to an endo expert.
>this is bringing on also all sorts of bizarre effects on mybody. i know
>if its on the bowelormuscle weird symptoms can occur.

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Next message: lou: "Re: current endo or ovary remnant??"
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