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Re: Endo / Cheese / Urination / Extreme Bladder Pain / Help

From: A (anonymous@obgyn.net)
Fri Aug 1 12:34:12 2003


Yup, the MRI tech noticed the Endo immediately. No ma'am, I haven't heard of Dr. R's site. I will email you from home. Thanks for offering. I am sorry to learn that you've had Endo since you were 13. That is crazy. I am also sorry for your losses ( babies ). I am confident that I will one day experience the same. 3 Surgeries in 3 years? Wow, that is plenty. I am scheduled for a Colonoscopy on Aug 21 ( the Endo may have spread to my intestines and the doctors need to see ). I also plan to go under the knife again soon to remove it from my bladder. It you haven't already, pls get an MRI of your bladder and schedule a colonoscopy; you have nothing to lose. I wish you well through your pain. Keep your chin up as well. I can't wait til they find a cure either!!!!!

Take care A

At Tue, 29 Jul 2003, Thumper wrote: >
>Frist, I have not heard that endo can be diagnosis by anything other than a
>lap. Never heard that an MRI could pick up endo. But with all the new
>treatment out there who knows. Have you looked under Dr. R's site? If you
>haven't email me biker-chick@swbglobal.net. I will give you the link. He has
>some good information about endo and how to talk to your doctor about it. I
>have had endo since I was 13 or 14. I am 25 now. I have lost 3 babies and
>have one that was 2 months premature. I have been on lupron, depo,
>antidepressants,HRT, BC's Pain meds OTC and perscription and have had 3
>surgeries in the last 3 years. There is not much out there I have not heard
>or been on. I hope that you get to feeling better. everyday I too have the
>same pain and bowel problems, and bladder problems that you have posted. I
>wish they would find a cure for this stupid disease!!! keep your chin up!
>
>--
>Thumper
>
>-----Original Message-----
>From: anonymous@obgyn.net [mailto:anonymous@obgyn.net Behalf Of A
>Sent: Tuesday, July 29, 2003 11:32 AM
>To: Multiple recipients of list ENDO
>Subject: Endo / Cheese / Urination / Extreme Bladder Pain / Help
>
>Hello,
>
>I was diagnosed last summer with Endometriosis and had surgery in August
>of 02' ( A Lapp turned into full blown surgery when it was discovered
>that my right ovary was wrapped around my fallopian tube and small
>intestine). Before the operation, I had severe pain in my bladder area.
>This pain still remains. A recent MRI of my bladder showed Endo in the
>area. Is there any one out there with extreme bladder pain made worse
>by eating cheese? When I urinate, it feels as if I have this big big
>bruise on my bladder that is being punched with plenty of force. And
>this pain is multipled after eating cheese. There is no vaginal pain,
>it's all in the pelvic area ( right above my hairline ). Intercourse is
>impossbile and my pelvi/bladder area is very very sensitive to the
>touch. Any advice?
>
>Thanks so much,
>Age
>




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