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Re: Another newbie
From: Denise (anonymous@obgyn.net)
Fri Aug 1 00:43:18 2003
Dawn,
Welcome to the forum first off:) While I have never been put on Lupron-I
refused it for side-effects. I have noticed in both the forum and in my
research that Lupron is either a great drug for you and you have no
problems or you have horrible side-effects and you wish that you had
never heard the name "Lupron." I am sorry to hear that you got the bad
end of the deal (but it seems that most women do-so atleast you aren't
alone!!) Even though your doctor would like to say that it is not the
Lupron-doctors sure as hell aren't always right-as we all know:) But
just hang in there and remember that you can stop the Lupron treatment
and not take the other doses of it-most women cut it off after a couple
of months because the side-effects. But good luck and remember that all
of us are here for you---Denise
At Thu, 31 Jul 2003, Dawn wrote:
>
>I've only recently discovered this site and after reading through some
>of the messages I see I'm not alone in the struggle to first get
>diagnosed with endo and then find some appropriate treatment.
>
>After 12 years of trying to deal with this, I've finally found a doctor
>who is willing to consider my needs and see me as a partner in treatment
>instead of a patient who is overreacting and should take my medicine and
>ask no questions.
>
>Basically, after the laparascopy the doctor said "you're a mess and
>endotmetriois is everywhere..." We made the decision to see a doctor who
>specialized in endo and would be able to remove it all in one surgery
>including a possible bowel resection. However, the waiting list is a
>year in length and now that the endo pain has taken over most of the
>month, desperation has caused me to give lupron a try.
>
>I had my shot a week ago but since then I have been sick. The next day
>I woke up dizzy, nauseous, throwing up and terrible diarrhea that hasn't
>stopped since then. My doctor seems unwilling to attribute this to the
>lupron but that's the only thing that's different.
>
>My question today is about other people's experience with lupron. If
>this is how it's going to be for 6 months, how on earth has anyone
>managed to stay on it?
>
>I'm at a loss. The pain is so bad that it's totally interferring with
>my daily living and doing nothing doesn't seem an option anymore. I
>hoped that the lupron would at least give me a reprieve but maybe I
>haven't given it long enough for my body to adjust. I guess my hormones
>are in total chaos at this point.
>
>Has anyone experienced these terrible flu-like symptoms after receiving
>the shot or am I just a freak as my doctor has suggested?
>
>--
>Dawn
>
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