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Re: New here - and my experiences so far.....
From: Sandy (anonymous@obgyn.net)
Thu Jul 31 08:55:20 2003
Thank you so much Denise, it feels good to just know there are others
out there that really do understand. :)
~Sandy
At Thu, 31 Jul 2003, Denise wrote:
>
>Sandy,
>
>I am also happy that you came across this site. I just found it a
>couple of weeks ago and already feel more supported than I ever have.
>Everyone that I have talked to so far has been kind and understanding:)
>I am sorry that you are running into the moronic doctor problem too. You
>will quickly find that most of us-like you-have been run around for
>years on end and at this point just want to kill someone!! While right
>now I can not really give you any advice on where to go from here, I
>just thought that I would write you and let you know that we are always
>here for anything that you may need:) Love and Prayers to you--Denise
>
>At Wed, 30 Jul 2003, Sandy wrote:
>>
>>I'm glad I came across this site.
>>
>>I am feeling VERY frustrated at this point! I hope you all dont mind but
>>I need to vent/share my experiences with others that are going through
>>the same thing and understand.
>>
>>It all started back in 1997, I was having extreme pain in my left flank.
>>I was living in NE at that time. I went to the Gyn and he examined me,
>>telling me I had a cyst inside my vagina. He also suspected endo, so he
>>scheduled surgery (larp) to see what was going on and take the cyst out
>>at that time.
>>
>>Well when I woke up they told me he couldn't find my left ovary that it
>>had attached itself to my spine and kidney and that was why I was having
>>such pain. Ohhhh how I felt SOOOO much better after that! He also told
>>me I had no endo, just alot of adhesions.
>>
>>(I do know that I have a tilted uteris and it sits pretty far back. I
>>also have an enlarged cervix, BTW I am 34 and have had 3 children and 1
>>misscarriage.)
>>
>>Well I started having the SAME pain again about 6 months ago! :( This
>>time I was not only experiencing pain like before on the same side again
>>BUT I am now bleeding in between periods a dark old blood discharge. And
>>after intercourse I hurt something terrible! So much that I cant stand
>>up straight or barely move. I also have periodic sharp pains that feel
>>like knives being twisted inside of me.
>>
>>I am now living in NC. So I went to a local Gyn here. The first visit
>>she tells me it sounds like endo. Well she examines me....same thing
>>she cant find my left ovary. She also took an endo biopsy. Well the
>>pap and biopsy came back normal & negative for endo. She perscribed
>>some pain meds and then sent me to have a vaginal sonagram. At that
>>time the lady left in the middle of the testing to get 2 other guys in
>>there and they were asking me a bunch of questions etc. I asked her at
>>that time did they see both my ovaries. She said No!
>>
>>So I go back to the Dr. to hear the results of that. Well she then
>>says the ovaries and uteris look normal. I'm thinking to myself ok
>>maybe she found them in the picture?! She then proceeded to tell me that
>>I might be a prime canidate for a hysterectomy since I already have 3
>>children and my tubes are tied. I personally am fine with that, all I
>>want is this horrible pain the end.
>>
>>(In between all this I had to go for several days with NO pain meds
>>cause my Dr. screwed up the RX and there was no such dosage for
>>Vicodin! I never did get through to the Dr. to get that fixed and
>>neither did the Pharmacist, that was over a month ago!)
>>
>>She she then refers me to the surgeon for a Pre-Op appt. That was just
>>yesterday. I go there "thinking" I am having surgery for a
>>hysterectomy. Well I get there and they dont even have me in the
>>computer for an Appt! I said well when do you have me in there....she
>>said your not in here at all to come back! I said well how am I supposed
>>to have surgery when you dont have me in there....I mean HELLO ppl!
>>grrrrr
>>
>>So this lady says can you go back home and get your appt card. (Oh sure
>>its only a half an hour back home and half hour back here!) I keep my
>>cool, and go back home and get it. At this point I am in pain, tired
>>and frustrated!
>>
>>They wanted me to come back the next week, but I said cant you please
>>work me in, this is nuts and proceeded to tell them exactly what I have
>>been through already with this place!
>>
>>So they finally worked me in and got me in the examining room. Then
>>this lady Dr. walks in and says I think your confused, after looking at
>>your files I believe you have endometriosis but your not getting a
>>hysterectomy! OMG ppl make up your mind!!!
>>
>>She tells me instead of surgery I can either start hormone treatment or
>>have the larp to see what is really going on. After thinking about it
>>for a few min. I said lets do this larposcopy. Cause at this point I
>>am SICK of this pain! So the end of this month (Aug) I am scheduled to
>>have a larposcopy and a hysteroctomy (sp).
>>
>>I asked her what happens if they dont see anything, she said well then
>>we are back to square one with what to do with you. Then she said they
>>are also doing a study about women who were sexually abused as children
>>and they "think" the pain is there but really isnt!!!! Can you believe
>>that shit! I could see a Male Dr. saying something like that since they
>>have never experienced periods/birthing etc. But a WOMAN!?
>>
>>I am TOTALLY at a loss at this point and need someone to talk to that
>>can relate. Please forgive me for such a long post. And I thank you in
>>advance for any help/advice/listening ear etc.
>>
>>~Sandy
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