Re: New here - and my experiences so far.....
From: Rachel (anonymous@obgyn.net)
Wed Jul 30 17:18:32 2003
Sandy, your story was so frustrating to read that I can't even begin to
imagine what you're going through. I do have one recommendation. Have
you searched for an endo specialist in your area? If I was in your
situation, I'd be so mad, that I'd say "screw it all" and start over
with a specalist. But, of course, this is entirely up to you. For that
doctor to even mention that study to you, as if you're out of your mind,
is so unethical I could scream. It makes me angry how women are treated
in the medical community, even by other women. I really hope you find
some answers. When is your surgery scheduled? Are you going to go
through with it? Let me know if I can be of any more help. Hope you're
well.
--
Rachel
At Wed, 30 Jul 2003, Sandy wrote:
>
>I'm glad I came across this site.
>
>I am feeling VERY frustrated at this point! I hope you all dont mind but
>I need to vent/share my experiences with others that are going through
>the same thing and understand.
>
>It all started back in 1997, I was having extreme pain in my left flank.
>I was living in NE at that time. I went to the Gyn and he examined me,
>telling me I had a cyst inside my vagina. He also suspected endo, so he
>scheduled surgery (larp) to see what was going on and take the cyst out
>at that time.
>
>Well when I woke up they told me he couldn't find my left ovary that it
>had attached itself to my spine and kidney and that was why I was having
>such pain. Ohhhh how I felt SOOOO much better after that! He also told
>me I had no endo, just alot of adhesions.
>
>(I do know that I have a tilted uteris and it sits pretty far back. I
>also have an enlarged cervix, BTW I am 34 and have had 3 children and 1
>misscarriage.)
>
>Well I started having the SAME pain again about 6 months ago! :( This
>time I was not only experiencing pain like before on the same side again
>BUT I am now bleeding in between periods a dark old blood discharge. And
>after intercourse I hurt something terrible! So much that I cant stand
>up straight or barely move. I also have periodic sharp pains that feel
>like knives being twisted inside of me.
>
>I am now living in NC. So I went to a local Gyn here. The first visit
>she tells me it sounds like endo. Well she examines me....same thing
>she cant find my left ovary. She also took an endo biopsy. Well the
>pap and biopsy came back normal & negative for endo. She perscribed
>some pain meds and then sent me to have a vaginal sonagram. At that
>time the lady left in the middle of the testing to get 2 other guys in
>there and they were asking me a bunch of questions etc. I asked her at
>that time did they see both my ovaries. She said No!
>
>So I go back to the Dr. to hear the results of that. Well she then
>says the ovaries and uteris look normal. I'm thinking to myself ok
>maybe she found them in the picture?! She then proceeded to tell me that
>I might be a prime canidate for a hysterectomy since I already have 3
>children and my tubes are tied. I personally am fine with that, all I
>want is this horrible pain the end.
>
>(In between all this I had to go for several days with NO pain meds
>cause my Dr. screwed up the RX and there was no such dosage for
>Vicodin! I never did get through to the Dr. to get that fixed and
>neither did the Pharmacist, that was over a month ago!)
>
>She she then refers me to the surgeon for a Pre-Op appt. That was just
>yesterday. I go there "thinking" I am having surgery for a
>hysterectomy. Well I get there and they dont even have me in the
>computer for an Appt! I said well when do you have me in there....she
>said your not in here at all to come back! I said well how am I supposed
>to have surgery when you dont have me in there....I mean HELLO ppl!
>grrrrr
>
>So this lady says can you go back home and get your appt card. (Oh sure
>its only a half an hour back home and half hour back here!) I keep my
>cool, and go back home and get it. At this point I am in pain, tired
>and frustrated!
>
>They wanted me to come back the next week, but I said cant you please
>work me in, this is nuts and proceeded to tell them exactly what I have
>been through already with this place!
>
>So they finally worked me in and got me in the examining room. Then
>this lady Dr. walks in and says I think your confused, after looking at
>your files I believe you have endometriosis but your not getting a
>hysterectomy! OMG ppl make up your mind!!!
>
>She tells me instead of surgery I can either start hormone treatment or
>have the larp to see what is really going on. After thinking about it
>for a few min. I said lets do this larposcopy. Cause at this point I
>am SICK of this pain! So the end of this month (Aug) I am scheduled to
>have a larposcopy and a hysteroctomy (sp).
>
>I asked her what happens if they dont see anything, she said well then
>we are back to square one with what to do with you. Then she said they
>are also doing a study about women who were sexually abused as children
>and they "think" the pain is there but really isnt!!!! Can you believe
>that shit! I could see a Male Dr. saying something like that since they
>have never experienced periods/birthing etc. But a WOMAN!?
>
>I am TOTALLY at a loss at this point and need someone to talk to that
>can relate. Please forgive me for such a long post. And I thank you in
>advance for any help/advice/listening ear etc.
>
>~Sandy
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