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New here - and my experiences so far.....From: Sandy (anonymous@obgyn.net)Wed Jul 30 16:52:55 2003
I'm glad I came across this site. I am feeling VERY frustrated at this point! I hope you all dont mind but I need to vent/share my experiences with others that are going through the same thing and understand. It all started back in 1997, I was having extreme pain in my left flank. I was living in NE at that time. I went to the Gyn and he examined me, telling me I had a cyst inside my vagina. He also suspected endo, so he scheduled surgery (larp) to see what was going on and take the cyst out at that time. Well when I woke up they told me he couldn't find my left ovary that it had attached itself to my spine and kidney and that was why I was having such pain. Ohhhh how I felt SOOOO much better after that! He also told me I had no endo, just alot of adhesions. (I do know that I have a tilted uteris and it sits pretty far back. I also have an enlarged cervix, BTW I am 34 and have had 3 children and 1 misscarriage.) Well I started having the SAME pain again about 6 months ago! :( This time I was not only experiencing pain like before on the same side again BUT I am now bleeding in between periods a dark old blood discharge. And after intercourse I hurt something terrible! So much that I cant stand up straight or barely move. I also have periodic sharp pains that feel like knives being twisted inside of me. I am now living in NC. So I went to a local Gyn here. The first visit she tells me it sounds like endo. Well she examines me....same thing she cant find my left ovary. She also took an endo biopsy. Well the pap and biopsy came back normal & negative for endo. She perscribed some pain meds and then sent me to have a vaginal sonagram. At that time the lady left in the middle of the testing to get 2 other guys in there and they were asking me a bunch of questions etc. I asked her at that time did they see both my ovaries. She said No! So I go back to the Dr. to hear the results of that. Well she then says the ovaries and uteris look normal. I'm thinking to myself ok maybe she found them in the picture?! She then proceeded to tell me that I might be a prime canidate for a hysterectomy since I already have 3 children and my tubes are tied. I personally am fine with that, all I want is this horrible pain the end. (In between all this I had to go for several days with NO pain meds cause my Dr. screwed up the RX and there was no such dosage for Vicodin! I never did get through to the Dr. to get that fixed and neither did the Pharmacist, that was over a month ago!) She she then refers me to the surgeon for a Pre-Op appt. That was just yesterday. I go there "thinking" I am having surgery for a hysterectomy. Well I get there and they dont even have me in the computer for an Appt! I said well when do you have me in there....she said your not in here at all to come back! I said well how am I supposed to have surgery when you dont have me in there....I mean HELLO ppl! grrrrr So this lady says can you go back home and get your appt card. (Oh sure its only a half an hour back home and half hour back here!) I keep my cool, and go back home and get it. At this point I am in pain, tired and frustrated! They wanted me to come back the next week, but I said cant you please work me in, this is nuts and proceeded to tell them exactly what I have been through already with this place! So they finally worked me in and got me in the examining room. Then this lady Dr. walks in and says I think your confused, after looking at your files I believe you have endometriosis but your not getting a hysterectomy! OMG ppl make up your mind!!! She tells me instead of surgery I can either start hormone treatment or have the larp to see what is really going on. After thinking about it for a few min. I said lets do this larposcopy. Cause at this point I am SICK of this pain! So the end of this month (Aug) I am scheduled to have a larposcopy and a hysteroctomy (sp). I asked her what happens if they dont see anything, she said well then we are back to square one with what to do with you. Then she said they are also doing a study about women who were sexually abused as children and they "think" the pain is there but really isnt!!!! Can you believe that shit! I could see a Male Dr. saying something like that since they have never experienced periods/birthing etc. But a WOMAN!? I am TOTALLY at a loss at this point and need someone to talk to that can relate. Please forgive me for such a long post. And I thank you in advance for any help/advice/listening ear etc. ~Sandy
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