Re: Endo after hysterectomy
From: anne-marie (anonymous@obgyn.net)
Fri Jul 4 17:11:47 2003
Michelle,
Thank you for your reply. I really appreciate it. I've made up my mind to
have the surgery. My family can't afford the meds & surgery later! It's just
too expensive. I know I'll have an adjustment period to Menopause and it
will be difficult for my husband and friends until after I have my HRT meds
adjusted properly. I just hope & pray that my endo specialist will do the
surgery and not insist on me trying Lupron first. That drug scares me more
than surgery. Everything I've read about it just doesn't sound like it's
something they should be giving. I know that it has helped a few people but
from what I've researched it's hurt more than it's helped. I'll let you know
what the Dr. says after my appt. on Monday. :)
Anne-Marie
>----- Original Message -----
From: "Michelle" <anonymous@obgyn.net>
To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
Sent: Thursday, July 03, 2003 2:53 PM
Subject: Re: Endo after hysterectomy
> Anne Marie,
>
> I'm 25 years old and have already had a radical hysterectomy. I am very
> fortunate to live in Ontario, Canada, where are health care is paid for,
> unlike the United States. I have drug coverage through my retail job at
> work. I'm sorry that's kinda off subject here. What I wanted to tell
> you is that I'm living proof that you CAN still have endo after a hyst.
> I have a ton of pain everyday and take narcotics everyday for it. I
> feel like its going to be this way forever. I am seeing a psychiatrist
> right now who's helping me cope through this very rough time. 3 months
> ago I had both my overies and tubes removed, and I am not in more pain
> then I was before the surgury. There is no cure for this horrible
> disease. My only suggestion is to have your overy taken out. Lupron
> doesnt work for very many women, I was on Zoledex which is like Lupron
> and costs $1500. I was lucky my medical pain pays for 80% but it gave
> me no relieve at all, so if your going to pay for this drug, why not
> just have your overy removed, yes you will go into menopause, and yeah
> it does suck, but maybe there will be a chance that your endo will go
> away. We all have to have faith everyday to keep going, that one day
> they will find a cure for this.
> All the luck to you Anne.
>
> At Tue, 1 Jul 2003, anne-marie wrote:
> >
> >Abby,
> >
> >Thank you for your reply. I know for a fact that I don't have ins.
because I
> >work for myself as a Nail Technician. I am self employed and have checked
w/
> >just about every ins. co. out there and can't get coverage. And if they
are
> >willing to cover me it's astronomical and it won't even cover that area
of
> >my body. Believe me I have tried, but to no avail.
> >
> >Anne-Marie
> >
>> >>----- Original Message -----
> >From: "Abby" <anonymous@medispecialty.com>
> >To: "Multiple recipients of list ENDO" <endo@dns.obgyn.net>
> >Sent: Tuesday, July 01, 2003 2:19 PM
> >Subject: Re: Endo after hysterectomy
> >
> >> At Mon, 30 Jun 2003, Anne-Marie wrote:
> >> >
> >> >>>>Anne-Marie,
> >>
> >> Are you certain that you have no insurance coverage? If you've worked
in
> >> your job for a certain length of time and this is group coverage
through
> >> an employer,(not an individual policy), the "pre-existing condition"
> >> clause should not apply. Check with the Department of Insurance (they
> >> regulate insurers)in your state.
> >>
> >> >>>I had a total vag. hysterectomy in March of 2002. My right ovary
was
> >> >>>taken out in 1996 due to endo and my Dr. couldn't save it. My
ob/gyn.
> >> >>>left in my left ovary and left the 3 endo implants he found on it in
> >me!
> >> >>>He said he didn't want to put me into menopause at my age (30). A
> >> >>>little over a year later I find that I am having problems again.
> >Painful
> >> >>>intercourse w/ my husband, lower back pain and severe pain in my
lower
> >> >>>left side where my ovary is. I went to a new dr. who was
recommended
> >> >>>to me, she recommends that I try the Lupron shot for a min. of 3
> >> >>>months. My problem is that I have no health ins. due to
"pre-existing
> >> >>>conditions" (the endo). My new dr. charges $1000.00 per month for
thr
> >> >>>shots and can't even guarantee that they'll work and if they do only
> >for
> >> >>>a while. My dad is paying my med. bills, as my husband and I
can't.
> >> >>>Does Lupron really work or should I just have the ovary removed and
go
> >> >>>on HRT. I know the surgery is a lot more expensive, but in the long
> >run
> >> >>>I think it would be cheaper and less painful, if I'm going to have
to
> >> >>>have the surgery anyway. and the shot doesn't work, I wasted all
that
> >> >>>$. My new gyn. referred me to Dr. Steven McCarus @ Celebration
Hosp.
> >> >>>in FL., is he any good, will he do what a patient wants, which I'm
> >kinda
> >> >>>leaning toward the surgery. Somebody pls. help me! I'm tired
living
> >my
> >> >>>life in pain. I have been going through all this for over 8 years.
> >> >>>
> >> >>>--
> >> >>>Anne-Marie
> >> >>>
> >> >>--
> >> >>"6:58, are you sure where my spark is? Here, here ... here?"
> >> >>
> >> >--
> >> >Anne-Marie
> >> >
> >>
>
> --
> Michelle
>
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