Re: EXtreme Frustration with Medication Choices and Lupron Bashing
From: Beth (anonymous@obgyn.net)
Fri Jun 27 16:48:42 2003
I just had my last lupron shot 1 week ago,i was on it for six months. I
strongly believe that lupron is not the way to go. I had a laprooscopy
in January and then started the lupron shot 3 weeks later. I have never
had so much pain in my life! the only thing that was nice about lupron
is No Period, i saved a lot of money considering i would bleed for 2
weeks straight heavilythen be off for a week or two and start again. I
will be so happy when this shot wears off. My ob/gyn is a beast! And
thats saying it nicely. She does not know what she is doing. she wants
to do a hystorectomy and i am only 22 with no kids. i have had 5
friends go to my doctor and they all have said the same thing. right
now i am in the middle of finding another doc. she wants to keep me on
lupron and i refuse. I will not be put through that agian. If anyone
wants to email me at my Daiseyqt@hotmail.com i would be more than happy
to recieve emails and talk about anything concerning endo. I have been
a victim of endo for years and i am now starting to finally understand.
Please email me if you need to talk. Good luck to all. Beth
At Fri, 27 Jun 2003, anonymous wrote:
>
>At Fri, 19 Jul 2002, anonymous wrote:
>>
>>I can't take oral contraceptives because I can't tolerate them. I can't
>>take
>>danazol because I have PCOS. My only other choices seem to be Lupron or
>>remova l of organs-which apprently doesn't help either. I am aware of
>>the lupron risks and that people almost die or turn into vegetables,
>>etc. That it is on OSHA's list of hazardous materials, that it is used
>>in sex offenders for chemical castration. That it can be a short term
>>solution. That is is a wretched horrible drug.
>>YES I KNOW.
>>Is it that or go through more surgery, this time removal of my organs?
>>It is hard enough being on this medication without constantly being
>>reminded that it can kill me, make me semi-retarded, affect me for the
>>rest of my life, etc. I appreciate the warnings, but I KNOW ALL THIS.
>>Most of us KNOW this. If we are on the computer, most of us have done a
>>lupron search and have seen the Lupron Victims Network.
>>We have read the horror stories on this BBS.
>>This makes it extra hard for those of us finding relief with lupron and
>>for people who are out of treatment options.
>>There should be a seperate Lupron/Synarel forum so people can go to town
>>and just be supportive here. Just an opinion from a hot, cranky, sleep
>>deprived user of the evil lupron.
>
>I can say that I know exactly how you feel but i just came off the
>lupron shot about 2 months ago and hearing all the stuff out there does
>make it worse because the docs made me feel like this would be the cure
>all for me believe me it wasn't LUPRON IS A NIGHTMARE but i haven't
>found any message boards for others who have taken it and don't know
>what to do now or how to cope with all this trying to find a good doc if
>you ever want to email it's somewhereoutthere_2@msn.com i wish you luck
>all a person can do is take it day by day me i've got a lawyer
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