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Re: EXtreme Frustration with Medication Choices and Lupron BashingFrom: anonymous (anonymous@obgyn.net)Fri Jun 27 15:43:28 2003
At Fri, 19 Jul 2002, anonymous wrote: > >I can't take oral contraceptives because I can't tolerate them. I can't >take >danazol because I have PCOS. My only other choices seem to be Lupron or >remova l of organs-which apprently doesn't help either. I am aware of >the lupron risks and that people almost die or turn into vegetables, >etc. That it is on OSHA's list of hazardous materials, that it is used >in sex offenders for chemical castration. That it can be a short term >solution. That is is a wretched horrible drug. >YES I KNOW. >Is it that or go through more surgery, this time removal of my organs? >It is hard enough being on this medication without constantly being >reminded that it can kill me, make me semi-retarded, affect me for the >rest of my life, etc. I appreciate the warnings, but I KNOW ALL THIS. >Most of us KNOW this. If we are on the computer, most of us have done a >lupron search and have seen the Lupron Victims Network. >We have read the horror stories on this BBS. >This makes it extra hard for those of us finding relief with lupron and >for people who are out of treatment options. >There should be a seperate Lupron/Synarel forum so people can go to town >and just be supportive here. Just an opinion from a hot, cranky, sleep >deprived user of the evil lupron. I can say that I know exactly how you feel but i just came off the lupron shot about 2 months ago and hearing all the stuff out there does make it worse because the docs made me feel like this would be the cure all for me believe me it wasn't LUPRON IS A NIGHTMARE but i haven't found any message boards for others who have taken it and don't know what to do now or how to cope with all this trying to find a good doc if you ever want to email it's somewhereoutthere_2@msn.com i wish you luck all a person can do is take it day by day me i've got a lawyer
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