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Re: stage 4 endo and kidney pain?

From: anonymous (anonymous@obgyn.net)
Tue Jun 10 23:51:43 2003


At Sat, 22 Dec 2001, Dena wrote: >
>Hi Jill,
>
>I too am 28 with stage 4 endo. My endo was discovered during a lap to
>remove a large cyst on my ovary. The laparoscopy turned into a
>laparotomy. Two and a half months later, I am about to have my second
>Lupron injection and continue to have pain in my left kidney. I have
>made it clear to my doctor throughout that the pain in my kidney was
>most bothersome. My doctor ran numerous tests and found nothing. The
>only conclusion he can come to is that the kidney pain is from the
>adhesions.
>
>Again, like yourself, I have had trouble with headaches. When I began
>the Lupron the headaches intensified. I have recently begun add back
>therapy with the estradiol patch twice a week. My headaches are much
>less severe. Only once in a while will I get a good one. Have you
>tried Fioricet? If I take two it is guaranteed to go away but I get a
>little loopy. One is enough to take the edge off and still be able to
>perform at work.
>
>I have heard many horror stories about Lupron. I realize I have not
>been on it for long, but the side effects aren't that bad for me. I
>take a lot of vitamins every day and I truly believe that I wouldn't be
>feeling this good without them....Can't forget the Calcium especially!
>The only things that are really bothersome are recent memory loss and
>insomnia. I can't remember simple things, common words, etc. It's so
>frustrating.
>
>Sorry for the novel. I hope some of this helps you.
>
>--
>Dena
>
>At Fri, 21 Dec 2001, Jill wrote:
>>
>>Yesterday I had my first laproscopic surgery, and the doctor found that
>>I have stage 4 endo. I have had terrible menstrual cycles since I was
>>young and I had a suspision that I might have it, but I am a little bit
>>nervous knowing that it is stage 4. I am 28 and the symptoms I have had
>>include varying pain throughout the month, and I also have had an
>>ovarian cyst which burst (it's the reason I had the surgery), I also
>>have kdney pain but my doctor doesn't seem to think it is related to the
>>endometriosis. Has anyone else experienced kidney pain with endo? Also
>>she wants to start me on lupron for 2 months at first. I get migranes
>>with the pill.....will I get them with lupron....does anyone know of any
>>alternatives to hormone therapy for endo?????? I'm kind of lost any info
>>would be greatly appreciated!
>>
>>Thanks...Jill
>
>--
>Dena
>



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