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Re: Can anyone recommend an Endo specialist near the Kansas City area?

From: EndoVictim (anonymous@obgyn.net)
Tue Jun 3 10:36:59 2003


Sounds like you have, like most of us, gone through quite a lot. Sorry you are having such problems.

Check out this website for a list of endo docs state by state...

http://www.hcgresources.com/docs.html

Good Luck!

~Susan

At Sun, 1 Jun 2003, Melissa wrote: >
>I was diagnosed with endometriosis in 1999 when my OB/GYN did a
>laparoscopy. He gave me pictures of the endo that were taken during the
>procedure and explained that my case was too severe to do anything about
>in that procedure as it could cause a lot of scar tissue which would
>outway any benefit. I was 30 years old and trying to conceive. I was
>also diagnosed with PCOS and my Dr. said it could be either one keeping
>me from becoming pregnant. I had a "blighted ovum" about 6 months
>previous and still had not regained my cycle. I was told that was the
>PCOS. My Dr. wanted me to undergo Lupron therapy for 6 months and try
>to conceive after that. I read about Lupron and didn't want to do it.
>We settled on trying Clomid, but my Dr. didn't really think it would do
>it because he felt the endo was probably to blame, not the PCOS. I was
>lucky and got pregnant the second month. We have a 2 1/2 year old
>little boy!
>
>Last summer, 2002, after my cycle returned, I had intense
>pain--especially in the rectal area. My OB/GYN once again recommended
>the Lupron therapy, this time I agreed to try anything to ease the pain.
>I had the first injection August 2, 2002 and the second injection
>November 1, 2002. I want to make this part very clear to everyone--they
>will tell you that the injection is to be given the first day following
>your cycle. IF YOU ARE SPOTTING, THAT SHOULD BE CONSIDERED A DAY OF
>CYCLE! The nurse at my OB/GYN told me incorrectly that a little spotting
>didn't count and we did the injection that day. I had 2 weeks of the
>most intense, horrific pain I have ever experienced in my life. My
>organs had all ballooned and my OB/GYN said my ovaries were 4 times
>their normal size. It felt as if my organs were going to burst out any
>body cavity available. That was the first injection. The 2nd went
>smoothly and I was pain free from September 2002 thru the first part of
>May 2003. It is all coming back and I just got my cycle back this week.
>It is extremely heavy and painful.
>
>I am also having problems with reflux and my family Dr. put me on 30mg
>Prevacid for the last month and it is doing nothing. I had an
>ultrasound of my gallbladder last week, which shows no stones, but there
>is a polyp. Could this be endometrial adhesions? After my lap in 1999,
>my OB/GYN did say that there were adhesions further north in the body
>cavity than he had ever seen. I am wondering if we shouldn't do another
>laparoscopy to see if the endo has advanced. I have painful bowel
>movements and am very concerned that I may have some serious problems.
>
>Can anyone recommend a good Endometriosis specialist in the Kansas City
>area? Thanks for your time and I hope you all have a wonderful day.
>
>--
>Melissa
>




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