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Re: HELP ME UNDERSTAND PLEASE!!!
From: anonymous@obgyn.net
Sat May 31 15:35:44 2003
IBS may be a symptom for some women with endo, but I was misdiagnosed
with IBS (before I knew for sure I had endo - I suspected I had endo)
and it was only endo causing the problem. At the time of my
hysterectomy, my sigmoid colon, uterus and left ovary were all adhered
together. Changing the diet to eliminate bowel problems may not work if
endo is on the bowel. I was on medication for IBS and it didn't do
anything to really help because that wasn't the problem, it was the
endo. This is just my experience.
Best wishes,
D.N.
At Sat, 31 May 2003, Tina wrote:
>
>Tina,
>
>Hold off on the Hysterectomia until you do some research. I am having a
>similar situation. Stage 3 endo on the bowel, lasered. Depot lupron 5
>months w/ alysese + 2 months lupron only. Lupron worked some, but not
>great. I have to take pain killers to have sex. We don't bother
>anymore. 30 pounds underweight. Found out my lap was done wrong, and
>wrong drug given for add back therapy while on lupron. My doctor did
>one thing that was worth the lap, he destroyed the nerves that caused my
>menstral cramps.
>
>I found out that excision should have been done instead of laser on
>organs. The laser can cause adhesions and it doesn't remove the endo on
>organs. Laser is only ok for ovaries and certain pelvic areas. There
>is a correlation between adhesions and the expertise of the surgeon. Dr.
>Redwine only thinks excision should be performed. You have to get an
>experienced surgeon (100+ surgeries/year), because the gyns consider
>attack of organs rare. Hysterectomia will not help, if the lap was not
>done properly.
>
>You could possibly have a problem with your colon; however, IBS is often
>a symtom of endo. Read some of the information from Dr. Redwine and
>Dr. Franklin, experts on endo. I am reading the medical papers to
>learn what I can and have talked to different gyns. The Endometriosis
>Association has a list of doctors that sponsor the EA and information.
>(http://www.endo-online.org)
>
>Let me know if your doctor found endo on your colon. I have a lot of
>information about diets and nutrition to help control intestines.
>
>--
>Tina
>
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