ENDO Messages for May, 2003: Re: leg pain and endo

Re: leg pain and endo

From: liss (anonymous@obgyn.net)
Fri May 30 14:02:32 2003

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All of my pain is leg and knee pain (not toes though). It is sort of nice to hear that others have this too! Doctors usually assume my pain is in the pelvic area or back, but it's not. One doctor told me that the real pain would be in my pelvis area, but that different nerve pathways can carry it elsewhere. I sometimes find it hard to walk -- stairs are the worst, I feel like a very old frail woman who could tip over. I feel like I have to drag myself around. I don't get shooting pains -- it pretty much aches in the same spots (always on the front of my thighs and knees) and has varying intensity (like gripping).

What is interesting is that if I were to get a rare painful upset stomach, the sort of gripping pains from that are manifested in both my stomach and my legs -- does anyone else find that? Does anyone have a theory as to why doctors often say that exercise makes endo pain better, but we seem to think it makes leg pain specifically worse? --Liss

At Fri, 30 May 2003, Amy wrote: >
>At Fri, 30 May 2003, Kirsti wrote:
>>
>>At Thu, 29 May 2003, anonymous wrote:
>>>
>>>Hi My question is to endometriosis sufferers out there, does anyone that
>>>has endo pain also suffer from leg pain? Pain that go's from the pelvic
>>>area down one or both legs. I know it sounds like a dumb question but
>>>I'v got to know. Thankyou.
>>
>>Yes I also get it down one or both legs, with more exercise it gets
>>worse until i have trouble to walk at any pace. I have sometimes
>>stabbing pains going directly down, sometimes just aching, and sometimes
>>it feels like i have pulled my grion muscles. I have had a lap but i
>>still get it.
>
>I get pain in my right groin and it also runs down my leg, all the way
>to my foot sometimes. It is usually a very achy kind of pain that is
>sometimes crippling. Exercise also makes mine worse. The worst of all
>is sitting for long periods of time. I have a desk job and by the end
>of the day my leg and groin pain is so bad that I can barely walk or sit
>without major discomfort. When it is bad I have found that wearing
>jeans or tight pants makes it seem worse. I usually have to wear baggy
>pants or dresses. I tend to think that the sciatic nerve is
>responsible. I have seen reports of the sciatic nerve being effected by
>endo, but there is no way to get to it to remove it because it is
>burried deep in muscle. I had a laporotomy to remove what was there but
>the pain still persists.

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