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Re: Hysterectomy @ 24 because of Endo-

From: Beth (anonymous@obgyn.net)
Fri May 30 09:55:30 2003


I as well had a hyst on feb 10th. I am 32 and have no children. We managed to save one overy. Full blowen surgical menopause was not an option for me at this age. Lupron was enough. (I am having extremly mild menopause symptems). We removed uterus, cervix, and managed to clean up my bowel( a world of diff. with the bowel). I must tell you I feel alive again, for the first, time in 15 years. Yes I know it has not cured me, but it has given me a chance to live. Before the surgery it was exhusting to even do my house work. Forget about bringing laundry up the stairs, let alone a job, school,or social life. A week after the surge. I became CONSTIPATED.....oh my god. Ended up in emerge...7 hrs and 3 enimas later. Still no go. I had an angel for a nurse. So Beware of what you eat after. ( in my case valentine chocholates, and I knew better..but they looked so good). You are not to lift anything over 10 pounds after as well. It was not explained to me why. From my understanding ( correct me if i am wrong) this is to give your blatter a chance to settle in so to speak. Well I did not listen..I felt like hurcules on the pain meds. So now I pee more than ever.... For the past 9 years all I have been doing is peeing lol. While I was in the hospital and again felt good on the morphine...while walking around I did not have my drainage tube secured..while home and healing, it hurt worse than the incision. So becareful with that. What I found the worst was sitting on my butt for the 8 weeks, we are endo warriors and are used to pain...it is the mental part that gets us. Having a hyst. is a very personal decsion with many diff. factors coming into play. Once we have seached our soul, and made that informed descion, We need to be supported. A very well meaning non-suffer in my life, phoned me a week before my surge, and told me not to do it. To fly to were she lived and see her naturalpath. Because as she stated, a hyst was not a cure. Yea okay...I am blindly ignorant about my disease, and I will run to my big bank account ( unemployment has given me so much extra cash). And see once again another doc. That was not what I needed at that time!!! But then again this was the same person who said I MUST take my uterus out of the hospital and have full moon funeral for it... " each to there own" BUT please....lol. Yea i have a place for that organ in the trash..good ridence. So here I am...Up at the butt crack of dawn...what are my plans today. Is it to hang out on my couch...eat some soda crackers to get the pain meds down. NO I am painting the outside of my house. Doing some yard work....and what ever else might pop up...oh yea maybe make a souffle..no just kidding no souffle. I look at it this way those that have children are blessed ( god knows I tried but that is not my journey.) You have two, if this gives you a better quality of life, so will they. I wish you well and if anyone would like to email me with any Q's, fears,comments ect. feel free. pearls_pad@hotmail.com With this post I would like to send my love to all my fellow endo warriors. You are all in my heart. Beth B.

>I had a partial hysterectomy on Feb. 4, 2003. I didn't choose to have
>it because of my endo I did it because I also had fibriods that caused
>extremely heavy periods with huge clots. I am now, not quite 4 mths
>post op and I'm still sore. At my 3 mth post op I realized my endo was
>returning. The only good thing is not having my horrible periods and
>the terrible cramps. My lower belly is still tender and when I ovulate
>or have my "cycle" I still do have endo pain, just not as strong as
>before. Hope this helps
>
>--
>Julie
>>
>>Just wondering if anyone has had a hysterectomy due to endo? I have been
>>in constant pain for about 8 weeks now. My surgery is scheduled for
>>June 9th (16 days and counting) I was just wondering how quickly you
>>recovered from surgery, and if your pain went away? I have opted for a
>>partial hysterectomy.
>>
>>I was on the Lupron Depot for 6 months to no avail. That's why I am
>>having the hysterectomy. I have 2 beautiful children, and didn't plan
>>on having anymore. My dr. is the greatest. She is so supportive, and
>>understaning. I am taking Darvocet, rotating with Ultram for the pain,
>>I take a pill just about every 2 hours or so! Rediculous isn't it! But
>>hey if it keeps me out of pain then so be it.
>>
>>Steph
>






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