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Re: LupronFrom: Lori (anonymous@obgyn.net)Wed May 28 20:19:34 2003
At Wed, 28 May 2003, anonymous@obgyn.net wrote: > >According to my Gyn *most* of the side effects of Lupron are reversible >including the bone density! Have you lost any hair? That was and still >is my biggest problem but she said that would reverse itself in time. >Are you taking Calcium supplements? Have you been on Lupron for 2 years >straight? Why isn't surgery an option for you? I'm just full of >questions from your previous post. Being on continuous birth control is >something a lot of dr's do but if you do that you have to make sure it's >a low or NO estrogen pill. Endo is so complicated. > >At Wed, 28 May 2003, Lori wrote: >> >>Its me again. I just went through and read alot of the messages about >>the Lupron, and wow! alot of you girls are having terrible side effects >>on it! I did have increased pain and symptons the first 3 months, but >>after that it was like having my life back. Does anyone know if you >>will gain back the bone density, if you lose any, once your off of >>Lupron? I am starting bone density tests next week, and add back >>therapy. But I've heard some people say that you do gain the BD back, >>and others say you don't. It really worries me. Anyone else hear >>anything? >>God Bless, >>Lori Thank you to whoever replied to me! I am taking double calcium, and have been all along. I also do weight bearing exercise 6 days a week. I have been on Lupron for 1 yr. and 4 months straight. There are a few reasons that I can't and won't do surgery. Please don't laugh at me, it is hard to tell anyone these things. I was in the hospital as a child and, well, remember getting things done to me from a nurse or doctor, I'm not sure which. They weren't doing medical things to me, they , well, you know what i mean. It has effected every aspect of my life since then. I go beyond hating doctors, and I know it is unreasonable, I should just get over it. I can't. I have finally forced myself to go to a doctor and ask for help with the endo, after dealing with it for 15 yrs on my own. I trust my doctor to a point. But I cannot deal with the knowledge that I will be unconscience during surgery, and they could do anything to me with me not being able to stop them. I have never had an exam with him because of this, I was diagniosed through a pain diary, and all my information that I had researched and given to him to discuss with me. I have not told my doctor why I won't do surgery, I've told no one except my husband until now. Please don't laugh at me. The other reason is that I cannot be gone from work for months at a time. I will lose my job. There is no medical leave. So you see, Lupron is my saving grace. I am praying that they approve Lupron for longer and longer periods of time, so that I can stay on it. I wish there were other options but for right now, this will do. Thanks again to whoever responded. Sorry about the sob story.
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