Re: Confusion
From: EndoVictim (anonymous@obgyn.net)
Mon May 12 13:25:07 2003
I agree with the other poster in all that she said. A hyst. is not a
cure at all. It sometimes relieves pain for women. But, it does not
eradicate Endo, and therefore the symptoms and pain can return. For
many women the battle of dealing with surgical menopause has been just
as bad as having Endometriosis. You may want to look more into the
hyst. side effects and stories of women that have had one before
pursuing such a drastic approach. Check out the website hystersisters
(you will have to do a search for it on google or yahoo b/c I can't
remember the exact site address), they have a ton of stories there.
Also, check out this website for more information on Endo Treatments:
http://www.geocities.com/endovictims/treatments.html
I wish you the best of luck in whatever you choose. But, remember, the
only way to really beat this disease is to learn all about it. You have
to RESEARCH, RESEARCH, RESEARCH....as most doctors don't know much about
this baffling disease!
~Susan
At Mon, 12 May 2003, anonymous@obgyn.net wrote:
>
>Hey,
>I am so sorry that you are feeling badly. And I understand the desire
>to want to live pain free. But I think that your doctors are correct in
>saying that hysterectomy is not necessarily the answer. First off,
>wanting to have kids later is not the only reason to say no to a hyst -
>if you had the operation, your hormones would not be the same, leading
>to bone loss, sexual side effects, and mood changes. True, there is
>hormone replacement, but at your age you may not want to commit to a
>lifetime of synthetic hormones. Your uterus does many things in your
>body besides making babies, including supporting other organs,
>stimulating hormones to be produced, and just being a part of your body.
>Second, hyst is not always a cure for endo - many endo sufferers have
>had one, only to continue to suffer. Third, I am not sure what
>treatments you have tried, but there are many alternative which are less
>radical than having a major organ removed, like diet change, exercise,
>natural progesterone, continuous birth control pills, periodic
>laparoscopy excision, and many more that women on this board can tell
>you about. In my opinion, one should try then all before resorting to a
>hyst.
>I understand how you feel - this disease absolutely sucks. But it is so
>complicated and so individual to each sufferer, that there is no "magic
>bullet" to get rid of your symptoms. I think you should do some more
>research, and start trying out different treatment alternatives, without
>assume that a hyst will necesarily be the best one for you!
> Good luck, feel better.
>
>At Mon, 12 May 2003, Vicky wrote:
>>
>>Hi
>>
>>I am eighteen years old and live in England. WHen i was 12 i was
>>diagnosed with PCOS and had an operation to have an ovarian cyst
>>removed. After this i had severe adhesions developing so at the age of
>>17 i had a laparoscopy to divide them. My consultant then discovered i
>>had endomitriosis as well. I have tried everything my doctors can think
>>of to try and suppress the symptons and pain but nothing is working. The
>>only thing left is too have a hysterectomy. I have been living a life
>>that i feel is like hell for the past 9 years (my period started when i
>>was 9 and that was when my trouble started) and will do anything to make
>>it stop. Yet my consultant thinks im too young to have a hysterectomy
>>because i may want kids when im older. The way i see it is, with these
>>two conditions the chances off me fertile when im older are so slim i
>>would prefer to have a pain free life from now one. I was wondering if
>>anybody else sees it my way, because of everyone i know only my mum
>>understands me.
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