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From: Amanda (anonymous@obgyn.net)
Wed May 7 11:35:17 2003


Tania,

I read your story and I feel so bad for you. This disease is hell. I have had it for over three years. I too had surgery, was on Lupron and Danazol and continuous BCP and all kinds of pain meds and only got sicker and sicker. The only thing I found that worked was a comprehensive, alternative health care program at a place called Total Health Institute. Even if you don't live in the Chicago area you can go online and get all of the information and stuff you need to follow the program. The website is http://www.totalhealthinstitute.com

I didn't believe it would help at first but I was totally wrong. AFter I started it I had almost no pain anymore. And I got off all those horrible drugs that were making me have hot flashes and mood swings and crying jags and dizzy spells and no life at all.

You can read my story on the Endo Quilt. It is under Miss Amanda M. Falk.

Amanda >At Tue, 22 Apr 2003, Tania wrote:
>>
>>I know this is weird, you don’t even know me, but I have no one to talk
>>to, and could really use some help…
>>My name is Tania and this is really hard for me.
>>I just recently found out i had endo... had surgery to remove some,
>>and am now on depot lupron shots to try and take care of the rest.
>>People who are on some kind of hormone treatment can probably answer
>>this better.
>>Geez i dont even know how to ask this...
>>Its hard... I haven't told but 3 people about anything going on, and
>>here i am talking to perfect strangers..
>>well here goes..
>>I'm 20, and I'm not sexually active. BUT I do have a boyfriend of 2.5
>>years whom i love very much and lately I've noticed that I repeal any
>>of his efforts to be physical... kisses... touching (sorry!) and
>>pretty much everything. I dont know why i do it, its like an
>>automatic reaction before i even realize whats going on.
>>It scares me and makes me feel like i'm about to lose one of the most
>>important people in my life. Could this unattraction to a physical
>>relationship be due to the shots and the hormone rollercoaster they
>>put me on? Or one of the thousand medications that go along with it?
>>Please please i'm begging you help me.




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