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Re: Due for 2nd Lupron shot--Don't want to continue with this...Help!!-PAM FROM MINDY

From: DJ (anonymous@obgyn.net)
Tue Apr 29 00:35:45 2003


At Tue, 1 Apr 2003, Mindy wrote: >
>Please don't feel like a fool! We have all been there. We learn as we
>go and that is what we are all here to do....help the learning process
>go by a lot faster! I am so glad you are being referred to an Endo
>Specialist. Please take caution though.....even with this referral.
>Many claim to be speicalists when they are not. I fell that a
>specialist has performed hundreds (or in the case of my doc thousands)
>of endo surgeries. Here is a website of questions you should ask on
>your first visit.
>
>http://www.endometriosistreatment.org/html/talking.html
>
>Please read them and know that you are in charge and don't feel bad
>taking the time to ask these questions. It's your body!
>
>Best wishes to you and I am soooooooooooooooooooo happy you decided to
>stop the Lupron. Not only do we have to deal with the current side
>effects, who is to say what the long terms ones are??
>
>Mindy :-)
>
>At Tue, 1 Apr 2003, Pam wrote:
>>
>>Mindy,
>>
>>Stopping the Lupron right this minute!! I was a fool for listening to my
>>doctor. Just got off the phone and I am FINALLY being referred out to see
>>an ENDO specialist. I've been passed around from doctor to doctor the last
>>31/2 years and hopefully this new doctor will help me. I just don't
>>understand why GYN's think they can perform all these surgeries and think
>>It's okay, knowing it's not their expertise, but going ahead anyway. I feel
>>like such a fool for trusting all these doctors and not taking more of a
>>proactive approach for myself. LESSON LEARNED!! I'm happy to hear your
>>story and glad you are pain-free. It's so nice to hear success stories, it
>>gives us sufferers so much hope.
>>Your friend in Endo,
>>
>>Pam
>>

>>>>>----- Original Message -----
>>From: "Mindy" <anonymous@obgyn.net>
>>To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
>>Sent: Monday, March 31, 2003 8:40 PM
>>Subject: Re: Due for 2nd Lupron shot--Don't want to continue with
>>this...Help!!
>>
>>> If you have severe endo, Lupron will probably not solve anything. I had
>>> severe endo and was put through the same thing. It did nothing except
>>> cause me a lot of misery. I found that the only way to get help was to
>>> find a surgeon to remove the disease by excision and that's what I did.
>>> Almost two years ago, I found Dr. Redwine in Bend, Oregon and I chose
>>> him to do my surgery. I am still pain free. I would not rush to have a
>>> hysto either. Endo can grow on other organs and continue to cause pain
>>> even after a hysto. I don't know your age, or your stage in life, but
>>> please do more research on this. Here is Dr. Redwine's website. It
>>> will probably answer many of your questions.
>>>
>>> http://www.endometriosistreatment.org/
>>>
>>> I wish you well. We have all been where you are and understand your
>>> frustration. Hang in there!
>>>
>>> Mindy
>>>
>>> At Mon, 31 Mar 2003, Pam wrote:
>>> >
>>> >Have had sever endo for many years now. Waiting for hysterectomy,
>>> >possibly a Laparotomy. Dr thinks Lupron will shrink my endo and get me
>>> >out of pain, for now! I've been on Lupron before and against my better
>>> >judgement I am back on for the first month and feel like I made a huge
>>> >mistake. I'm bleeding worse than before with more cramping and having
>>> >horrible mood swings. Don't think I can keep this up. My shot is in
>>> >two days, should I continue with this??? I'm sitting here sobbing as I
>>> >write this and really think I need some advice.Thanks,
>>> >
>>> >--
>>> >Pam W.
>>> >
>>>

--
Mindy,
Thank you for still being here and being so helpful.  ou really seem to be gifted in encouragement.
I wrote you months ago as I was considering seeing Dr Redwine.  Though I would have loved to see him it seems in my
best interest go go with Dr Albee which I have heard great things aobut also.
Again...thanks!
DJ



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