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Re: glad i'm not alone

From: Kayla (anonymous@obgyn.net)
Sun Apr 27 19:00:53 2003


Kelly,

Your right, you aren't alone. I am 20 and was diagnoised w/ endo last July. I have stage IV which was discovered a few weeks ago after my second lap. It was hard for me too to find a good doctor that would listen to me and help me. I honestly thought for the longest time after talking to my mom that having cramps and being sick around my period was normal. It wasn't until my physical before my first year in college, I actually had the nerve to tell my doctor about how my period was, and months later before I would actually let someone look at me down there....I was actually forced to have that happen by the school clinic....I walked in looking pregnant(I wasn't) and was in excruciating pain. I had two ovarian tumors that led to surgery and when that didn't aleve the menstrual pain, I went to the ER and had a psychotic doctor do an pelvic and I practically kicked him in his face cause he shoved the speculum up me and then with a smirk on his face told me that nothing was wrong. Yet, when I came home and saw my usual doc, she did an ultrasound and found a cyst that exploded, explaining all the pain. After four more cysts bursting and horrible pain, she did a lap and found stage I endo. Having endometriosis will always be a day to day battle but YES some days are better than others. There will be days or weeks where you'll go with no pain....every woman's case is different but we all have the same disease and we aren't alone. Hang in there!

At Sun, 27 Apr 2003, anonymous@obgyn.net wrote: >
>This endometriosis thing is driving me crazy, but reading the emails from all
>of you helps a great deal to realize I'm not alone. After three grueling
>years of searching for "What is wrong with me?!" with many different doctors
>and being misdiagnosed (IBS, PID, ect), given pain killers, and being told
>"It's all in your head", I finally found a doctor who listened, believed my
>pain, and did a laprascopy. I have stage two endometriosis. The treatment
>is almost as bad as the endo and the cysts were, because I'm so moody and
>dizzy and tired, although I was all that before.... I was on Lupron for three
>months, which gave me horrible hot flashes, and now I'm on Yasmin 28 birth
>control pills that hurt my stomache. I guess we just can't win, you know?
>People treat me like, "Ok, you were diagnosed, and you had the stuff removed,
>so get over it" but it's not that easy, is it ladies? I'm only 23. Will it
>be like this always?
>-Kelly

--
Kayla
**Just someone who cares, preparing for the medical field**



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