Re: Anyone with hip associated with endo?
From: Anita (anonymous@obgyn.net)
Sat Apr 5 20:05:14 2003
Hi all, I am 42 and have had endo for 22 years. I first found out when
I was 20 and went to gyno for infertility. I had a huge cyst that had
to be removed and my left tube and ovavy with it. I was told to have my
family right away. I had 2 children and 5 years later was in for a
histerectomy. For years I would still have mentral pain and I would
spot every month. Yes I had no uterus but I did spot for 3 days every
month. The doctors just said as long as it wasn't too bothersom not to
worry. Than it stoped for a few years until last Nov. I spotted again
and had the pain. About 5 weeks ago on a Sat. I had severe pain on my
right side into my back and hip and even down by my ankle. That Mon I
had an ultra sound and I had 5 cysts on my ovary. After 2 weeks of pain
and waiting to see if they would go away and didn't I had laposcopic
surgery she took my right tube and most of my ovary but couldn't get it
all because it and the endo was enhered to my pelvic wall and bladder. I
still have bad hip and back pain. I started the lupron shots 2 weeks
ago. I have not experienced any menopousal syptoms yet. The pain still
remains. At my job I am on my feet and with alot of ibpro. I do all
right but the nights are bad for me also. I can't sit or lay down with
out the pain worsening. I sleep on a heating pad most of the night. I
am hoping the lupron injection will work. Has anyone out there had the
full 6 months of injections with sucess? I doubt if a hysterrectomy will
end your endo problems. I have only a small portion of one ovary left
and still have pain. If you do decide on a hysterectomy make sure they
take the overies that is what keeps endo alive! i hope we all find
releif soon! I am glad i found this site I was beginning to think I had
something other then endo wrong with me. Anita
At Mon, 10 Mar 2003, kdrury wrote:
>
>Pam it is so weird, I also have had endo for several years and have severe back & hip pain. When I went to my doctor he thought since I had wreck that was what was wrong. So after several months of physical therapy TWICE! I'm still in pain. And now he wants to do a hysterectomy.
>
>Hope we can get relief soon.
>Kim
>
>>> ----- Original Message -----
> From: Pam Waters
> To: Multiple recipients of list ENDO
> Sent: Sunday, March 09, 2003 9:40 PM
> Subject: Anyone with hip associated with endo?
>
> Thur March 7,
>
> Amy, I have spent the last 3 years with back/hip pain. I was diagnosed with
> endometriosis in my twenties. I've had a D&C, three or four
> laparoscope's(I've lost count) and many years of infertility treatments,
> including, three articificial inseminations., GIFT and two Invitro
> Fertilizations. I am now 43years old. When my pain started it felt like
> bruises on my hips. I can't even sleep on my sides at night anymore. I
> have been sent to Physical therapists, who couldn't figure out why I had
> pain in hip/back area. Yet they still had me doing six months worth of
> therapy which left me in more pain than I started out with. Next I was seen
> by a round of Orthopedic surgeons, one of which was at Bethesda in Maryland.
> The President is seen there for goodness sake!! Not one of these doctors
> could find anything other than a little degenerative disc problem. Finally
> I went to my gyn and asked him if my back /hip pain could be associated with
> my Endo? He said it was a possibility, that perhaps the endo had attached
> itself to the some nerve endings in my back. He did another laparoscopy and
> removed what he could of my endo. We were hoping this surgery would help
> with the back /hip pain. I was hopeful after the surgery because I wasn't
> in pain anymore. Unfortunately the pain slowly came back after several
> weeks. After that he suggested I go to a Pain Clinic, which I did. The
> doctor there put me on narcotics my body cannot tolerate. Because my
> husband is in the Navy, I am seeing Navy doctors here at Balboa in San
> Diego. We moved here this past July,2002. Since then I have been sent to
> another orthopedic surgeon who, by some miracle was a woman.She is convinced
> the endo and back pain are related. She then sent me to see a Gyn who
> promptly did an endo biopsy and tried to put me on Lupron injections. By the
> time I left his office I was drained and felt as if he thought this
> medication would make it all go away. Unfortunately for me I've been down
> the Lupron road before (hotflashes, night sweats, mood swings). I refuse to
> put myself into medically induced menopause. Also, I know this will not
> help with my back/hip pain. As an aside to this I have been seeing a pain
> specialist who has done three Epidural back injections and they have done
> nothing to ease my agony. I have lived in pain far too long. I want my
> life back. I am at the point where I am willing to undergo a complete
> hysterectomy if it will relieve my suffering. I know this doesn't help your
> pain, but I wanted you to know that you are not alone. You are not crazy
> and there are other woman out there who will listen. To me that is a
> comfort. Today I have this letter with me in hopes my new doctor, a woman,
> who will understand what I've gone through and help me.
>
> Pam Waters
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