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Re: Due for 2nd Lupron shot--Don't want to continue with this...Help!!

From: anonymous@obgyn.net
Wed Apr 2 07:29:11 2003


At Tue, 1 Apr 2003, Pam wrote: >
>Mindy,
>
>Stopping the Lupron right this minute!! I was a fool for listening to my
>doctor. Just got off the phone and I am FINALLY being referred out to see
>an ENDO specialist. I've been passed around from doctor to doctor the last
>31/2 years and hopefully this new doctor will help me. I just don't
>understand why GYN's think they can perform all these surgeries and think
>It's okay, knowing it's not their expertise, but going ahead anyway. I feel
>like such a fool for trusting all these doctors and not taking more of a
>proactive approach for myself. LESSON LEARNED!! I'm happy to hear your
>story and glad you are pain-free. It's so nice to hear success stories, it
>gives us sufferers so much hope.
>Your friend in Endo,
>
>Pam
>

Pam do not feel like a fool this just adds to the feeling of guilt that most women feel that have Endo.

We are all bought up as children to believe that when we are sick you go to the doctors and they will fix it - it is hard to accept there are areas of medicine that may not be able to be cured - however this is not anyones fault to carry.

Also remember that aside from the physical effects of endo there are the highly underrated mental effects that must also be addressed at some stage.

Remember that there is still alot of background social pressure on women that make us believe that endo makes us feel as if we are failures, for instance from other women who still believe that you must suffer in silence, from mothers that never had the same problems, from social ideals that still place the importance of a women being tied to childbirth, from medical people who tell you that the drug has worked for other people, from medical people who tell you they cannot explain why the endo has regrown in you (forgetting to mention that this occurs in a % of women), when the medicine provided causes side effects (with again the drs forgetting to inform you about the possibility of this, when IVF doe not work for you, when you believe that you let your partner down if children are not produce.

To fight Endo women have to draw on inner strength, you need to accept that it is not a sign of failure but a medical reality, try to educate those around you however if this effort is rejected you need to distance them from involvement, you need to control the drs not them control you. This is greatly helped by ensuring someone accompanies you to your appointments (drs are used to the control mechanism of one on one, Dr providing help to patient requiring help, it always changes this bond if a third person is there, the third person can also be relied on to ask questions when at times you are in so much pain you can forget to ask or and listen.

Most of all you have to really believe that it is not your fault, learn all you can before any appoinments as information is power and spend time in reflecting your feelings about the disease so that you can mentally become stronger to deals with all the issues surrounding this disease so they may be put in perspective and in some cases to bed.

Good luck

>>>----- Original Message -----
>From: "Mindy" <anonymous@obgyn.net>
>To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
>Sent: Monday, March 31, 2003 8:40 PM
>Subject: Re: Due for 2nd Lupron shot--Don't want to continue with
>this...Help!!
>
>> If you have severe endo, Lupron will probably not solve anything. I had
>> severe endo and was put through the same thing. It did nothing except
>> cause me a lot of misery. I found that the only way to get help was to
>> find a surgeon to remove the disease by excision and that's what I did.
>> Almost two years ago, I found Dr. Redwine in Bend, Oregon and I chose
>> him to do my surgery. I am still pain free. I would not rush to have a
>> hysto either. Endo can grow on other organs and continue to cause pain
>> even after a hysto. I don't know your age, or your stage in life, but
>> please do more research on this. Here is Dr. Redwine's website. It
>> will probably answer many of your questions.
>>
>> http://www.endometriosistreatment.org/
>>
>> I wish you well. We have all been where you are and understand your
>> frustration. Hang in there!
>>
>> Mindy
>>
>> At Mon, 31 Mar 2003, Pam wrote:
>> >
>> >Have had sever endo for many years now. Waiting for hysterectomy,
>> >possibly a Laparotomy. Dr thinks Lupron will shrink my endo and get me
>> >out of pain, for now! I've been on Lupron before and against my better
>> >judgement I am back on for the first month and feel like I made a huge
>> >mistake. I'm bleeding worse than before with more cramping and having
>> >horrible mood swings. Don't think I can keep this up. My shot is in
>> >two days, should I continue with this??? I'm sitting here sobbing as I
>> >write this and really think I need some advice.Thanks,
>> >
>> >--
>> >Pam W.
>> >
>>

--
Sammy



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