Re: Due for 2nd Lupron shot--Don't want to continue with this...Help!!-PAM FROM MINDY
From: Mindy (anonymous@obgyn.net)
Tue Apr 1 17:18:23 2003
Please don't feel like a fool! We have all been there. We learn as we
go and that is what we are all here to do....help the learning process
go by a lot faster! I am so glad you are being referred to an Endo
Specialist. Please take caution though.....even with this referral.
Many claim to be speicalists when they are not. I fell that a
specialist has performed hundreds (or in the case of my doc thousands)
of endo surgeries. Here is a website of questions you should ask on
your first visit.
http://www.endometriosistreatment.org/html/talking.html
Please read them and know that you are in charge and don't feel bad
taking the time to ask these questions. It's your body!
Best wishes to you and I am soooooooooooooooooooo happy you decided to
stop the Lupron. Not only do we have to deal with the current side
effects, who is to say what the long terms ones are??
Mindy :-)
At Tue, 1 Apr 2003, Pam wrote:
>
>Mindy,
>
>Stopping the Lupron right this minute!! I was a fool for listening to my
>doctor. Just got off the phone and I am FINALLY being referred out to see
>an ENDO specialist. I've been passed around from doctor to doctor the last
>31/2 years and hopefully this new doctor will help me. I just don't
>understand why GYN's think they can perform all these surgeries and think
>It's okay, knowing it's not their expertise, but going ahead anyway. I feel
>like such a fool for trusting all these doctors and not taking more of a
>proactive approach for myself. LESSON LEARNED!! I'm happy to hear your
>story and glad you are pain-free. It's so nice to hear success stories, it
>gives us sufferers so much hope.
>Your friend in Endo,
>
>Pam
>
>>>----- Original Message -----
>From: "Mindy" <anonymous@obgyn.net>
>To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
>Sent: Monday, March 31, 2003 8:40 PM
>Subject: Re: Due for 2nd Lupron shot--Don't want to continue with
>this...Help!!
>
>> If you have severe endo, Lupron will probably not solve anything. I had
>> severe endo and was put through the same thing. It did nothing except
>> cause me a lot of misery. I found that the only way to get help was to
>> find a surgeon to remove the disease by excision and that's what I did.
>> Almost two years ago, I found Dr. Redwine in Bend, Oregon and I chose
>> him to do my surgery. I am still pain free. I would not rush to have a
>> hysto either. Endo can grow on other organs and continue to cause pain
>> even after a hysto. I don't know your age, or your stage in life, but
>> please do more research on this. Here is Dr. Redwine's website. It
>> will probably answer many of your questions.
>>
>> http://www.endometriosistreatment.org/
>>
>> I wish you well. We have all been where you are and understand your
>> frustration. Hang in there!
>>
>> Mindy
>>
>> At Mon, 31 Mar 2003, Pam wrote:
>> >
>> >Have had sever endo for many years now. Waiting for hysterectomy,
>> >possibly a Laparotomy. Dr thinks Lupron will shrink my endo and get me
>> >out of pain, for now! I've been on Lupron before and against my better
>> >judgement I am back on for the first month and feel like I made a huge
>> >mistake. I'm bleeding worse than before with more cramping and having
>> >horrible mood swings. Don't think I can keep this up. My shot is in
>> >two days, should I continue with this??? I'm sitting here sobbing as I
>> >write this and really think I need some advice.Thanks,
>> >
>> >--
>> >Pam W.
>> >
>>
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