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Re: Due for 2nd Lupron shot--Don't want to continue with this...Help!!From: Patsy (anonymous@obgyn.net)Mon Mar 31 18:07:33 2003
At Mon, 31 Mar 2003, Pam wrote: > >Have had sever endo for many years now. Waiting for hysterectomy, >possibly a Laparotomy. Dr thinks Lupron will shrink my endo and get me >out of pain, for now! I've been on Lupron before and against my better >judgement I am back on for the first month and feel like I made a huge >mistake. I'm bleeding worse than before with more cramping and having >horrible mood swings. Don't think I can keep this up. My shot is in >two days, should I continue with this??? I'm sitting here sobbing as I >write this and really think I need some advice.Thanks, > >-- >Pam W. > Dar Pam: I also have had severe Endo for 27 years and have learned a lot- mostly by bitter experience. I am planning to write a book titled "The Endometriosis Scandal." What I can tell you is Lupron will make you sick, but it will not shrink the Endometriosis. I have heard that lie from several well respected obgyns. Why they believe it is beyond me, because even a few doctors say that nothing will dissolve Endo. Those two doctors are Dr. Davic Redwine, Oregon, and Dr. Andrew Cook, San Jose California. Both of them are in the Internet. When I got a Dupo Lupron shot I was sick on the sofa for six solid weeks. I neber went back for another shot! It stopped the pain, temporaily, but it stopped me too. What good is that? And it did not reduce the surface area covered by Enco e.g. It did NOT shrink it. The vast majority of doctors are grossly misinformed. I have read about women having permanent problems due to Lupron. So if Lupron and all the other hormone suppressants only mask the pain, they are no better than strong pain medicine e.g. Hydrocodone, Ultram (not strong.) I have been taking strong pain medicine for several years and they have fewer side effects than Lupron and all the other hormone suppressants. I am also planning a surgury with a doctor in California who has a very informative website: Dr. Andrew Cook. My email is patzy@tennis.com if you want to contact me. I hope you find relief for your pain. I think women with Endometriosis need to form a union toget the truth out. Sincerely, Patsy Koenig, Omaha, Nebraska
-- I have been diagnosed with Endo since 1983, twenty years. The dupo lupron made me sooo sick for six weeks and the sshot was only supposed to last 4 weeks. It works the same way Danazol work, by shutting down your estrogen production. That is why we feel like crap on it. When I took it, it stopped my pain but I was sick and bedridden for 6 weeks. Then the pain came back when I stopped taking it. There is only one way to stop Endo pain : Remove the Endometriosis by surgery. My Endo is on by colon, so my Hysterectomy/Oophorectocmy (ovariews removed) did not help. The docotrs including female doctors are unbelievably ignorant about how to treat Endo. My family doctor still cannot understand why I have pain after my Hysterectomy. It doen not seem to matter to them thatthe Endo was on my bowel , not on my uterus. If you want you can e-mail me, I unfortunately have tons of experience whith every so called cure for endo. Patzy <patzy@tennis.com>
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