ENDO Messages for March, 2003: Re: help?

Re: help?

From: Amy (anonymous@obgyn.net)
Wed Mar 26 06:19:07 2003

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In reply to: AGS: "Re: help?"

At Wed, 26 Mar 2003, AGS wrote: >
>Sean:
>
>Masses such as these are very common with severe endometriosis. Also,
>they should do a CA-125 level, but if it comes back elevated that still
>does not necessarily indicate cancer in the face of severe endo.
>
>I had a giant, pomelo-sized mass (larger than your average grapefruit
><G>) and a CA-125 of 200. And my mass had characteristics on ultrasound
>of cancer -- it was complex, "septated", etc. However, it turned out to
>be an endometrioma (or "chocolate cyst" as Rachel points out).
>
>An important suggestion for you: get a referral to a GYN-oncologist, and
>realize that it may take a hysterectomy to safely remove this. Mine was
>large enough, and complex enough, to involve both ovaries AND the
>uterus. Also, with severe endo and three childbirths (especially if
>they were cesarean), your wife may also have adenomyosis, which is when
>endo infiltrates the uterine wall. The symptoms would be heavy
>bleeding, with clots; periods that never QUITE are over; and constant
>cramping pain with miserable periods (I used to have contractions just
>like labor pains with mine).
>
>Please, please, do consult a GYN-oncologist. If, G-d forbid, it IS
>cancer, they have the expertise to do what is necessary without
>extending any cancer cells. They also can work on intestinal endo and
>endo implants in "creative" places, like the peritoneum or omentum. Your
>wife's chances, if it IS cancer, rise markedly with surgery by an
>oncologist -- this has been well-proven.
>
>Good luck!

--
Sean,
YEs, I agree a ca-125 should have been ordered already for your wife.  I just
went through all this and yes masses will show up for endo this is normal.
And if her ca-125 comes back high that to is also normal if she has endo.  Mine
was a 200 as well.  A hysterectomy will likely be in order. Good luck.

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