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Re: help?From: AGS (anonymous@obgyn.net)Wed Mar 26 00:43:39 2003
Sean: Masses such as these are very common with severe endometriosis. Also, they should do a CA-125 level, but if it comes back elevated that still does not necessarily indicate cancer in the face of severe endo. I had a giant, pomelo-sized mass (larger than your average grapefruit <G>) and a CA-125 of 200. And my mass had characteristics on ultrasound of cancer -- it was complex, "septated", etc. However, it turned out to be an endometrioma (or "chocolate cyst" as Rachel points out). An important suggestion for you: get a referral to a GYN-oncologist, and realize that it may take a hysterectomy to safely remove this. Mine was large enough, and complex enough, to involve both ovaries AND the uterus. Also, with severe endo and three childbirths (especially if they were cesarean), your wife may also have adenomyosis, which is when endo infiltrates the uterine wall. The symptoms would be heavy bleeding, with clots; periods that never QUITE are over; and constant cramping pain with miserable periods (I used to have contractions just like labor pains with mine). Please, please, do consult a GYN-oncologist. If, G-d forbid, it IS cancer, they have the expertise to do what is necessary without extending any cancer cells. They also can work on intestinal endo and endo implants in "creative" places, like the peritoneum or omentum. Your wife's chances, if it IS cancer, rise markedly with surgery by an oncologist -- this has been well-proven. Good luck!
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