ENDO Messages for March, 2003: Re: searching for some clues please-Koolinsask

Re: searching for some clues please-Koolinsask

From: Amy (anonymous@obgyn.net)
Sun Mar 9 20:48:11 2003

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: Margaret: "Tomorrow"
Previous message: merry: "extremely painful period"
In reply to: anonymous@obgyn.net: "Re: searching for some clues please-Koolinsask"

Hi I have an endocrinology/infertility specialist. His name is Dr. Magdy Milad and he is one of the top surgeons at Northwestern Memorial Hospital in Chicago. I had to wait three months to get in to see him but it was well worth the wait. I had a lot of pain prior to seeing him and being "high risk" for surgery, we tried the trigger point mapping and the physical therapy prior to surgery. In was a temporary, very minor relief. He also took me off the pill because he knew that was causing my pain too. My uterus was once again attached by scar tissue to my bladder and bowel. I had painful bowel movements and was taking medication to help prevent the need to pee constantly. I would get up three or four times a night to pee. My prior endo doctor told me to see a urologist. I went and they found nothing wrong, of course. I have never been happier with a physician. He is very responsive and we're a team. He knows when I have a concern, I need to come in and be checked out and he's always so impressed at how well I know my body because each time I have had to go back, it was for a significant reason. Unfortunately it did take a full six months to recover from this last surgery which was only supposed to be 2 hours but took 4.5 hours. Dr. Milad is very thorough and gives 150% to his patients. Each month recovering was different and it also depended on my stress level. I think I would have recovered a lot quicker if I wasn't working in such a stressful environment then my my mom was diagnosed terminally ill and recently passed away. So, I have had to go back unexpectantly because of the stress wreaking havoc on my body, but my past three periods, have been unbelievable. I have never been this pain free before in my life during a period. There are also other non-narcotic pain medications out there that are new and you may want to consider. I know that Celebrex helped me a couple months after my surgery with my hip pain and the pain I would endure after surg ery during physical therapy. I think the Vicodin I took prior to my surgery also contributed to bowel pain because it causes constipation but if your in pain....that's what pain meds are for. No one should have to be in pain. I hated taking the hormones. I took Synarel and could only handle five months of Lupron. My hip pain prior to my last surgery is not only related to the scar tissue and endo but also the bone density loss due to the hormones. I went close to four years before I had my fifth surgery (3rd laporoscopy). Let me know if I can be of any other help. Sincerely and best wishes, amy anonymous@obgyn.net wrote:What kind of a Specialist did your surgery? My Gyn is a "specialist" but she doesn't know what else to do with me. I've had 3 Laps and 2 rounds of Lupron and the continuous birth control. Sometimes I don't even know what to do with myself. It just seems like my body keeps being invaded by Endo regardless of what we do (me and my Gyn make all decisions together). Thank you all for your help and wealth of knowledge.

At Sun, 9 Mar 2003, Amy wrote: >
>I was just like both of you before my last surgery in May. I know exactly what it is like to have pain radiating from your ovaries to your hip and down your leg. This past (fifth) surgery was done by a specialist and followed up with more physical therapy and if I skip pt a week prior to a period I'll have the pain in my right hip that radiates down my leg. This new doctor is wonderful. I have never been this pain free before. I'm off the antidepressants and have my sanity back, I have energy and play sports again.
> anonymous@obgyn.net wrote:Cherryl-
>
>It sounds like you and I are in the same boat this week!
>I'm having terrible right ovary pain and bowel troubles!
>I feel like I'm going mad! I don't want to take anything
>stronger than OTC pain relievers but I do have a bottle of
>Vicodin that's screaming my name. Are you taking anything?
>I don't want any more surgeries either! I think 3 is enough
>and the 3rd time should have been a charm but it wasn't. Yes,
>this is a nightmare and don't you just wish someone would wake
>us up already??
>Have you called your doctor or anything? I'm tempted and I've
>been tempted to go to the ER just to make sure that my ovary
>hasn't exploded like it feels like it has 1,000 times since
>Thursday!
>
>I hope you feel better soon! I'll pray for you and I'll pray
>for myself to keep my sanity. And...this too shall pass (we
>hope).
>
>Good luck!
>
>-K
>
>At Sun, 9 Mar 2003, anonymous@obgyn.net wrote:
>>
>>Thank you for your' information, any and all is more than welcome, as I am in
>>literal pain , and finding it hard today to put any kind of pressure even on
>>my right leg, it radiates, that pain like crazy............I actually feel
>>crazy at the moment, and do not want to have to go in to the hospital, i
>>don't want any more surgeries........sighhhhh this is a nightmare........
>>
>>Love Cherryl

Next message: Margaret: "Tomorrow"
Previous message: merry: "extremely painful period"
In reply to: anonymous@obgyn.net: "Re: searching for some clues please-Koolinsask"

use when must restrict search to only the endometriosis forum...
Enter search keywords:
	Returns per screen: Require all keywords: