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Re: Back/Leg Pain
From: Amy (anonymous@obgyn.net)
Sun Mar 9 01:26:39 2003
Thank you all so much. I have been trying to "think" my pain away-
sounds crazy- but sometimes, I too, worry if it is all in my head. I
swear, if I am not complaining about one pain, then it is another and
another and another! I started on Toradol this evening -again- just to
give myself a break from the Vicodin. I think the Vicodin was adding to
my depression and possibly counteracting my anti-depressants. I will be
seeing a pain therapist in 2 weeks. I hope they can help me as much as
your pain therapist has helped you. I have tried bextra, ultram,
percocet {sp?} vicodin es, you name it...
Thank you all for your support- and while I do not wish this pain on
anyone- it helps to know that I am not the only one.
At Sun, 9 Mar 2003, Michele wrote:
>
>Hello, I stage 4 endo and was diagnosed by lap 9/2001. Shortly after my
>diagnosis I developed severe daily mid-lower back pain without a history
>of a bad back and I did not injure myself. I have been going through
>tests per the endo specialist that I see for about 1 year to determine
>if this back pain is something other than endo. To this date nothing
>abnormal has been found. Last week I saw a spine specialist. He took
>X-rays which were normal and I am going to have an MRI soon. If nothing
>is found I am to have another lap to see if the back pain is from endo,
>adhesions or both.
>
>In addition I was referred to a pain management specialist. I am so
>glad I went because before seeing him the quality of my life was very
>poor. I do worry though about having to take narcotics just to live
>some kind of a normal life. I felt at the time and still do that I
>have/had no other choice.
>
>I also have spent a great deal of time wondering if I am going nuts. I
>constantly second guess myself, wondering if any of this back pain is in
>my head. I know it is not.
>
>I had to respond to this post to let you know that you are not the only
>ones going through this and are not alone. I hoped this helped you in
>some small way.
>
>Please Take Care
>
>At Fri, 7 Mar 2003, Pam wrote:
>>
>>Thur March 7,
>>
>>Amy, I have spent the last 3 years with back/hip pain. I was diagnosed with
>>endometriosis in my twenties. I've had a D&C, three or four
>>laparoscope's(I've lost count) and many years of infertility treatments,
>>including, three articificial inseminations., GIFT and two Invitro
>>Fertilizations. I am now 43years old. When my pain started it felt like
>>bruises on my hips. I can't even sleep on my sides at night anymore. I
>>have been sent to Physical therapists, who couldn't figure out why I had
>>pain in hip/back area. Yet they still had me doing six months worth of
>>therapy which left me in more pain than I started out with. Next I was seen
>>by a round of Orthopedic surgeons, one of which was at Bethesda in Maryland.
>>The President is seen there for goodness sake!! Not one of these doctors
>>could find anything other than a little degenerative disc problem. Finally
>>I went to my gyn and asked him if my back /hip pain could be associated with
>>my Endo? He said it was a possibility, that perhaps the endo had attached
>>itself to the some nerve endings in my back. He did another laparoscopy and
>>removed what he could of my endo. We were hoping this surgery would help
>>with the back /hip pain. I was hopeful after the surgery because I wasn't
>>in pain anymore. Unfortunately the pain slowly came back after several
>>weeks. After that he suggested I go to a Pain Clinic, which I did. The
>>doctor there put me on narcotics my body cannot tolerate. Because my
>>husband is in the Navy, I am seeing Navy doctors here at Balboa in San
>>Diego. We moved here this past July,2002. Since then I have been sent to
>>another orthopedic surgeon who, by some miracle was a woman.She is convinced
>>the endo and back pain are related. She then sent me to see a Gyn who
>>promptly did an endo biopsy and tried to put me on Lupron injections. By the
>>time I left his office I was drained and felt as if he thought this
>>medication would make it all go away. Unfortunately for me I've been down
>>the Lupron road before (hotflashes, night sweats, mood swings). I refuse to
>>put myself into medically induced menopause. Also, I know this will not
>>help with my back/hip pain. As an aside to this I have been seeing a pain
>>specialist who has done three Epidural back injections and they have done
>>nothing to ease my agony. I have lived in pain far too long. I want my
>>life back. I am at the point where I am willing to undergo a complete
>>hysterectomy if it will relieve my suffering. I know this doesn't help your
>>pain, but I wanted you to know that you are not alone. You are not crazy
>>and there are other woman out there who will listen. To me that is a
>>comfort. Today I have this letter with me in hopes my new doctor, a woman,
>>who will understand what I've gone through and help me.
>>
>>--
>>Pam Waters
>>
>>>>>----- Original Message -----
>>From: <anonymous@obgyn.net>
>>To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
>>Sent: Friday, March 07, 2003 5:39 AM
>>Subject: Re: Back/Leg Pain
>>
>>> At Thu, 6 Mar 2003, Amy wrote:
>>> >
>>> >I have spent the past half hour reading through the archives about
>>> >shooting pains in the legs and lower back pain. This is what I am
>>> >experiencing 2 weeks after my Luna/Lap. I never had these type of pains
>>> >before my last surgery.
>>> >I had to pay someone to come to my house today and help me with my
>>> >children and housework- because I am in to much pain to do hardly
>>> >anything. And I cannot financially afford to be hiring people to fill
>>> >in the blanks for me. The back pain is so intense and shoots clear down
>>> >to my ankles. I am waiting for my doctor to call me back as I am
>>> >seriously considering a trip to the ER tonight. I read that these pains
>>> >are common with endo and also can be common after a Lap. My question
>>> >is- does it ever go away? Is it just a temporary side effect of the
>>> >surgery itself? Once you are plagued with the back and leg pains is
>>> >there truly a remedy? I do not wish to stay on all these medicines that
>>> >do very little for my pain. I am sure that my liver and kidneys could
>>> >use a break. I have tried hot showers, icy hot, heating pad, everything
>>> >that I can think of. My kitchen cabinet is a miniature pharmacy! Dozens
>>> >of pill bottles- and I cannot say that a single one of them works. If
>>> >any of you have found a way to remedy these pains- could you please let
>>> >me know what worked for you? Did you have to have another surgery? Maybe
>>> >you know of something herbal I could try? I am very frustrated. Thank
>>> >you.
>>>
>>> Amy- I too dealt with the leg and back pain all day yesterday! OMG, I
>>> thought I was going to die! It's a normal occurance for me and NOTHING
>>> helps. I considered a trip to the ER but I think the only thing they
>>> would do is give us some more narcotics that don't work in the first
>>> place. I turn on my heating pad and let it get as hot as it can, lay
>>> down and just die. I asked around and everyone said to give the doctor
>>> a call! You might want to try that. Being that you just had surgery I'm
>>> sure he/she will be understanding and maybe give you something a little
>>> stronger! Good luck and I certainly hope today is better for you. :)
>>>
>>> -K
>>>
>--
>Sick Near Seattle
>
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