|
Re: Endo...
From: Shari (anonymous@obgyn.net)
Fri Feb 28 17:26:26 2003
All I can say is wow. You have been through a lot in 24 years. I dont'
really have any advice for you. I was diagnosed with endo in 8/01, am
20 years old and on my third (three month) dose of Lupron. It has
really helped. I never heard of endo affecing nerves in the back...how
awful. Anyway, just wanted to make a reply to your message. Hope
things get better for you,
At Fri, 28 Feb 2003, anonymous wrote:
>
>I read everything that came to me in e-mails today. I can't believe how
>many people are like me. I have had endo since I started my cycle at
>12, I am now 24 years old and have had 7 or 8 Laporoscopies (the last
>one 1/27/03), Pre Sacral Neurectomy, Lupron treatments, BC treatments,
>Homiopathic? treatments, Acupuncture, and Narcotic treatment(that's what
>I call it). Before my first lap I was on multiple BC's. I had my first
>lap at 16, which the Dr. went in and diagnosed me but didn't remove
>anything. The pain returned w/ in weeks and they put me on Lupron.
>Holly crap was that the WORST experience of my life, my Dr. said it was
>a new treatment but failed to tell me it caused (SEVERE w/ me)
>depression. With in geez a week I had tried to commit suicide and was
>put in a hospital. It took over a month for it to leave my system. My
>mom called to talk to the Dr. but still to this day has never been able
>too. At 18 I was collapsing because the endo was effecting the nerves
>in my back. I would fall to the ground and not be able to move or walk
>for up to 4 hours. I went to the BEST ENDO SPECIALIST EVER in Seattle
>Washington. He was incredible, he immediately scheduled me for a lap
>and video taped the entire surgery, He told me things about my pain that
>I was embarrassed to tell him. The pain... you guessed came back w/
>collapsing again. He performed a pre sacral neurectomy. I got pregnant
>within 8 weeks, but the fetus didn't make it and I wouldn't
>spontaniously abort. Another surgery, and a few months after that I had
>to have another lap. I came back to CA and found another Dr. who
>performed another lap because the pain had becom horrible again. It was
>always my left side, which I noticed is with a lot of you. He gave me
>BC and SOOOOOOO many pain pils that I became hooked, if it didn't work
>he upped the dosage. So finally he performed another one. Again with
>in a year the pain came back he put me on Lupron w/ Estrogen pills to
>level out my hormones it worked but I was still emotional and refused it
>again. I realized with all the Estrogen based BC I was severly
>depressed and emotional, my husband said psycho. This last Dr put me on
>NOR QD? It was perfect for me no mood swings, no weight gain and the
>pain subsided for a year and a half but the pain came back (thankfully
>not anywhere as bad as before). I just had my last lap and it went well
>for 2 weeks until I came back to work and so did the stress. I have
>come to realize it comes back with stress at least for me. I got off
>the pill to try and get pregnant, but the pain in my left side has been
>getting more intense in intervals. I was told I have IBS also, in my
>old records it said I had endo on my intestines or bowels or both. Can't
>remember, but does anyone know anything to help?
--
ShaRiann
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)