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Endo...From: anonymous (anonymous@obgyn.net)Fri Feb 28 15:30:38 2003
I read everything that came to me in e-mails today. I can't believe how many people are like me. I have had endo since I started my cycle at 12, I am now 24 years old and have had 7 or 8 Laporoscopies (the last one 1/27/03), Pre Sacral Neurectomy, Lupron treatments, BC treatments, Homiopathic? treatments, Acupuncture, and Narcotic treatment(that's what I call it). Before my first lap I was on multiple BC's. I had my first lap at 16, which the Dr. went in and diagnosed me but didn't remove anything. The pain returned w/ in weeks and they put me on Lupron. Holly crap was that the WORST experience of my life, my Dr. said it was a new treatment but failed to tell me it caused (SEVERE w/ me) depression. With in geez a week I had tried to commit suicide and was put in a hospital. It took over a month for it to leave my system. My mom called to talk to the Dr. but still to this day has never been able too. At 18 I was collapsing because the endo was effecting the nerves in my back. I would fall to the ground and not be able to move or walk for up to 4 hours. I went to the BEST ENDO SPECIALIST EVER in Seattle Washington. He was incredible, he immediately scheduled me for a lap and video taped the entire surgery, He told me things about my pain that I was embarrassed to tell him. The pain... you guessed came back w/ collapsing again. He performed a pre sacral neurectomy. I got pregnant within 8 weeks, but the fetus didn't make it and I wouldn't spontaniously abort. Another surgery, and a few months after that I had to have another lap. I came back to CA and found another Dr. who performed another lap because the pain had becom horrible again. It was always my left side, which I noticed is with a lot of you. He gave me BC and SOOOOOOO many pain pils that I became hooked, if it didn't work he upped the dosage. So finally he performed another one. Again with in a year the pain came back he put me on Lupron w/ Estrogen pills to level out my hormones it worked but I was still emotional and refused it again. I realized with all the Estrogen based BC I was severly depressed and emotional, my husband said psycho. This last Dr put me on NOR QD? It was perfect for me no mood swings, no weight gain and the pain subsided for a year and a half but the pain came back (thankfully not anywhere as bad as before). I just had my last lap and it went well for 2 weeks until I came back to work and so did the stress. I have come to realize it comes back with stress at least for me. I got off the pill to try and get pregnant, but the pain in my left side has been getting more intense in intervals. I was told I have IBS also, in my old records it said I had endo on my intestines or bowels or both. Can't remember, but does anyone know anything to help?
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