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Re: endo

From: Alexandra (anonymous@obgyn.net)
Thu Feb 27 13:21:27 2003


At Thu, 27 Feb 2003, Marie wrote: >
>The three month shot may not have been lupuron, it may have been something else like zoladex. I had three month shots of that, it did wonders for me the only problems I had were once I got back on continuos birth control, and finally had a period.  
>I would talk to the doctors about what they had given me and how it works, also discuss options. I don't know how the insurance systems works, I live in England so I don't have to deal with all that.

>Good luck,
>Marie
>

>
>Stars burn brighter when no one is watching.
>
>>From: anonymous@obgyn.net (Norma)
>>Reply-To: anonymous@obgyn.net
>>To: Multiple recipients of list ENDO
>>Subject: endo
>>Date: Wed, 26 Feb 2003 10:38:33 -0600
>>
>>I had a cystectomy on Thursday February 20th, 2003 this is barely my 3rd
>>day back home.
>>I was diagnosed with Endometriosis, however the whole time I was going
>>to the OBYGN dept. at the hospital (County Hospital)The Doctors kept
>>telling me that the problem was on my left ovary not on my right. That
>>they in fact had seen the right ovary and it looked normal. They also
>>told me, they were going to do a sirgury which is call laparadomy. This
>>sirgury apparentley was going to require for them to open 1 little whole
>>under my waist and two on each side lower. They also said that the Cyst
>>was 12cmm. After the sirgury I realized they had cut me all accross,
>>like a sesarian sirgury and they called this a open laparadomy.
>>My question or opinion from you is: Is it really legal for the Doctors
>>to go ahead and open a bigger insicion after I had sign papers where it
>>specificaly showed that they were going to do just 3 little wholes,
>>instead of open me up all. And also, I'm kind of curious as of why they
>>would tell me the whole time that the problem was on my left ovary and
>>after surgery they told me that they had done the cystechtomy from my
>>right ovary.
>>Was it also, really necesary for they to cut me all accross when the
>>cyst was only 12cmm and apparently what they told me, was that the cyst
>>was just a big clowgth of blood?
>>They also gave a injection which I don't remember what the name of that
>>was and told me that I need one more in 3 months and after that I will
>>be on pills and this is to prevent from Endo to come back?
>>Is this going to make me gain weight? have acknee? What are the side
>>effects of this and can it make me infertile?
>>Is there a clinic you would recomend for me to go from this point on to
>>do follow ups about this Endo problem where they don't charge to much? I
>>don't have insurance, and I really don't trust the Doctors at that
>>Hospital since they tell me one thing but they do something totally
>>diferent?
>>I also would like to know, why and how is it that we get Endo,is it
>>hereditary or not and is there anything we can do naturally to prevent
>>it, whithout taking pills or anything like that?
>>Is there a book, you'll recommend or a website where I can learn more
>>about this Endo disease.
>>Thanks in advanced for your help, I'm sorry if I have a lot of grammar
>>issues but English is not my first language.
>>

--
I would like to know if anybody know a doctor who knows well Endometriosis. I leave in NY. I was diagnosed with severe Endometriosis back on 1999. Now I'm taking Lupron which I just finished for 6 months. I would appreciate is someone can email any doctor in New York.
Good luck to all of you.

thanks






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