Re: TAP on Endometriosis Forum-husband
From: anonymous (anonymous@obgyn.net)
Wed Feb 26 05:46:32 2003
It's so nice that Amy's husband came on to insult other women with Endo
for making valid points against a drug that has the potential to harm
his wife. However, since she didn't even consider Lupron herself,
thereby leading us to assume she has never taken it, she - and "husband"
have no idea whatsoever the depth of the Lupron issue and have no right
to speak on it...if indeed "husband" is speaking at all...
In any event, this forum doesn't "feed" me. How sad that you think it
does you! You are mistaken - without the PARTICIPANTS, there would be NO
NEED FOR TAP AND OTHER ADVERTISERS because there would BE NO SITE! Bite
that hand that feeds? Indeed. Perhaps the publishers should be mulling
that little concept over.
For the record, I don't read Cosmo and Glamour, nor do I have a free
hotmail account. And really, what does TAP infiltrating the patient
community with the help of websites and organizations have to do with
that?
Amy and her husband have not taken Lupron. They do not get the
privilige to speak out against it, nor would anyone expect them to take
a stance on it other than that which the status quo adopts everday.
Again - if you are not going to help make a difference, get out of the
way of the people who are.
At Tue, 25 Feb 2003, Anonymous wrote:
>
>I am assuming that Mr. Swanson is the hubby of Amy Swanson. What a
>wonderful husband! Makes me smile to think a guy could care so much
>about an Endo forum. Not many men take an interest. You are a lucky
>lady, Amy! I agree with you both. AND To anyone that disagrees-----Ever
>heard the saying- DON'T BITE THE HAND THAT FEEDS YOU! ???? Well....Have
>you??? Obviously not..........
>
>At Tue, 25 Feb 2003, Husband wrote:
>>
>>I understand you have a very strong bias against TAP and some, if not
>>all, of their products (e.g. Lupron). My wife has Endo and would not
>>consider Lupron, and neither would her OB/Gyn. She and I are grateful
>>for this site- even if it means that Lupron foots a portion of the bill.
>>As my wife said earlier- at least Lupron is good for something!
>>
>>For you to act so self-righteous and insulting in spite of the
>>administrator's explanation of how the site stays up shows that you
>>belong to a class of people that brings to my mind religious
>>fundamentalists at their very worst. Talk about cutting off your nose
>>to spite your face!!! - you would rather not have the information
>>available at all, than to allow TAP to buy a relatively non-invasive
>>form of advertising. (Checked your hotmail account, recently?-How do
>>you feel about all the porn?) Surely a Cosmo, Glamour or other women's
>>magazine contains much more advertising for this product, but do you
>>spew such vitriolic retoric at the publishers? No, you simply hand $4 to
>>the cashier.
>>
>>The moderator has explained the costs and REALITIES about running this
>>site. It is clearly a PASSIONATE labor of love. The costs involved are
>>more than a simple phone line and extra computer somewhere - someone has
>>to cover the costs of having a server co-located at an ISP, and the
>>bandwidth demands that the users place on it. Furthermore, the people
>>who are taking care of it are NOT making a living from it.
>>
>>If you don't like the product or the companies policies, the moderator
>>has made it very clear that you are more than welcome to speak out about
>>your experiences. You are invited to do so. You even get to do it at
>>TAP's expense! She is neither an employee nor a patsy, and negative
>>experiences with Lupron are NOT censored. (even at the expense of
>>losing their advertising $$$) The site is designed for the exchange of
>>information and support about Endo. - Fact is, Lupron is still a
>>prescribed therapy for endo, whether you like it or not.
>>
>>Your time would be better spent contacting the FDA and documenting your
>>problems with Lupron. If their marketing is devious and deceptive,
>>expose it and document it. Perhaps if you spent as much time pursuing
>>Lupron as the moderator did in maintaining the forum, you might get the
>>product pulled and give the company the black eye you so desire.
>>
>>The computer company I work for has some policies I care little for, and
>>makes some two faced and/or misleading statements from time to time.
>>Unfortunately, I am not willing to lose my house and have my family live
>>in a car over my differences in opinion or ethics. I hope that people
>>do their homework, and that businesses ARE held accountable for their
>>actions and statements. There are products and advertising campaigns
>>that make me grate my teeth, but I realize they are subsidizing
>>entertainment or publications that I enjoy or make use of. Alcohol and
>>tobacco used to support a few sporting venues, which are now having to
>>scramble to obtain subsidies in other ways, and have put some smaller
>>venues out of business.
>>
>>There are few support forums concerning Endo. The internet is not as
>>infinite as it would seem. While the internet recovers it's business
>>model, and sites struggle to come up with a means to sustain themselves,
>>it may mean that Lupron gets to buy a 50x200 pixel spot on web sites
>>until other companies decide that it is worth their money to advertise
>>here. Your actions and comments just might destroy any chance of those
>>"other" companies deciding that this is a worthwhile place to spend
>>advertising dollars.
>>Feel free to criticize Lupron all you want. Just know that it is the
>>administrator, Roberta Speyer, that has provided you the podium to do
>>so.
>>Be kind... Be considerate... Most importantly, be thankful. You women
>>suffer from endo- do you not have enough to complain about already?
>>Sincerely,
>>Mr.Swanson
>>P.S. My wife no longer cares about remaining anonymous. She and I are
>>both so very grateful for this site. Thank you, Roberta!!! We
>>appreciate everything!
>>And yes, we are willing to pay for this service- should it ever come to
>>that.
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