ENDO Messages for January, 2003: Re: To D.N. re: ORS

Re: To D.N. re: ORS

From: Cindy (anonymous@obgyn.net)
Mon Jan 27 17:01:02 2003

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ditto for me, Dena. no one's seen anything on the multitude of pelvic MRIs, ct scans or U/S's I've had for other reasons. but my hormone levels definitely showed that something was in there steamin' away. I have extensive abdominal adhesions from multiple bowel surgeries and going back in just for the remnant is not an option. and there are others that have had the remnant fished out, only to have other remnants that had been dormant, take over. I was having a lot of pain due to the remnant (ended up in the ER and was admitted 4 or 5 times). I was to the point that I was bleeding all the time despite a whole variety of hormone therapies. I had pretty disfunctional ovaries to begin with. I'm taking Synarel (similar to Lupron) which has (thankfully) given me relief from the pain. with the consent of my docs, I am taking it for as long as needed.

At Thu, 23 Jan 2003, D.N. wrote: >
>Hi Dena,
>
>No, I was not able to have laparoscopic surgery after the hyst or after
>my last surgery to remove the ovary. It would be too risky because of
>all the adhesions to the bowel. There is also no guarantee that they
>can get the remnant out. We treated it with continous bcps for some
>time and I had to quit because of migraine headaches. Also we tried
>Prometrium, but that caused depression. I didn't want to try Lupron. It
>has been 6 years since my last surgery and I am now very perimenopausal.
>
>Ovaries don't grow back, but I do think that remnants can enlarge
>because mine did. At first when I would have ultrasounds, the remnant
>was not visible, only the cysts. In the past year or so, we have been
>able to see the remnant too.
>
>At Thu, 23 Jan 2003, Dena wrote:
>>
>>Hi D.N.,
>>
>>I just have a question regarding your ORS. Are the doctors able to go
>>back in and remove the rest of your remaining ovary if you choose or
>>would that be too complicated or risky?
>>
>>The reason I ask is I have been having ultrasounds for IVF and just
>>found out that I have part of an ovary left that I was told was removed
>>well over a year ago due to endo. I have probably had over a dozen
>>ultrasounds and one laparotomy since that one was removed and no one
>>noticed it until now. Pardon my ignorance, but can it grow back?
>>
>>Thank you in advance for your reply.
>>
>>--
>>Dena
>>

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