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Re: aggressive angiomyxoma From: anonymous (anonymous@obgyn.net) Wed Jan 22 11:43:23 2003 Messages sorted by: [ date ][ thread ][ subject ][ author ] Next message: Marjorie: "Re: Severe bleeding and clotting...." Previous message: Amy: "Re: brown discharge" At Tue, 31 Dec 2002, helen wrote: > >At Sat, 21 Apr 2001, anonymous@obgyn.net wrote: >> >>to carolyn who has this rare tumour...my sister also suffers from this >>please reply as to how you are now are you in pain as my sister is daily >>what treatment are you taking...would love to hear from you or anyone >>else suffering from same...many thanks Geraldine > >-- >hi i also have this rare timour and i have been fighting it will be 11 years on 1-28 03 thay say it is not painefull that a lie iam going to try a treatment in a week or two i'll let you know if it works ps the only thing that has helped at all is god and a lot of praying > I have been dealing with pelvic aggressive angiomyxoma for 13 years and have had 7 surgical procedures, the last one in Sept.'02. Keeps coming back. The doctors say that my tumor is not hormonally receptive, so estrogen doesn't affect the growth. Very frustrating to have recurrence. Seems the only treatment is surgical excision of tumor. I have pain when the tumor grows and is pressing against a nerve. Next message: Marjorie: "Re: Severe bleeding and clotting...." Previous message: Amy: "Re: brown discharge"

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