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Re: Just be Dianosed Today - Do not like doc's Treatment planFrom: Anonymo (anonymous@obgyn.net)Thu Jan 16 10:12:19 2003
Thank you for your response. I am afraid I cannot agree with the second way of looking at it that you propose. For the Endometriosis Association to accept money, especially such large amounts of money at regular intervals, is a major conflict of interest and calls into question everything they do for me. You say the EA hasn't relaxed or changed its position toward Lupron. Again, I must doubt that. For example, I just reviewed their little "Do I Have Endemetriosis?" online tutorial that was mentioned in a previous post. This would have been a great resource that I would have referred people to, but when the woman in the tutorial asks three women with endo about treatment options, the first one says this: "Susan: About three years ago, my doctor performed a laparoscopy. He found endo on my ovaries and my bowels, and he said he got rid of it all. Well, about six months later, it came back. All the pain, the irregular, heavy periods, everything. I didn't want to go through surgery again, so I decided to take Lupron to control the endo. I have to say, it's a miracle drug. I finally have my life back. I took it for six months--as prescribed--and only had minor side effects like occasional hot flashes and headaches. I've been feeling good for two years now." To call Lupron a "miracle drug," to play down its side effects, to make it appear like a cure to endo is morally reprehensible in itself. But then they have no adequate response to this, just one of the other three women who says she disagrees and Lupron did not work for her and had side effects. It is clear from this example alone that the EA has gone to bed with TAP, and they have now lost all credibility in my mind. I do apologize to anyone who finds my statements overly harsh, but I am not telling you what to think, these are just my opinions. I have seen what Lupron has done to so many thousands of women and the highly unethical behavior of its manufacturer, TAP, and I can see no possible excuse for accepting money from them. The EA simply cannot operate in an objective unbiased manner when the interests of its members is directly in conflict with the interests of its corporate sponsors. The EA, unlike the ERC, has not been a source of information about the criticisms of Lupron and TAP, and the lawsuits against TAP, and of course, they cannot be when they are funded by TAP. This in itself puts them in the position of not doing the right thing for women with endometriosis because it would not be the right thing for a pharmaceutical company.
At Thu, 16 Jan 2003, anonymous@obgyn.net wrote:
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