ENDO Messages for January, 2003: Re: Help!

Re: Help!

From: Amy (anonymous@obgyn.net)
Tue Jan 7 12:16:14 2003

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Lori, Your message broke my heart because I know how it feels to be so desperate to get rid of the pain. It is so hard to think of living life when the pain is so severe. I don't have any quick and easy answers for you, but wanted to let you know that you are not alone. Someone else posted that perhaps you are allergic to birth control pills? That may be a possibility if many different types make you sick. I personally have no problem taking them (I take low ogestrol too, which is the generic for Lo-Ovral) but my own mother, as well as a few close friends could never take the pill because of the nausea etc. Do you have any pain meds? Or if not, would your Doc prescribe some to help alleviate the pain? If not, Ibuprofen might help. I have an actual prescription for 800mg Ibuprofen, which really helps take the edge off my pain. I don't tolerate hard core pain meds too well, so that is really my only option. You can get the same effect by taking four Advil. Also, maybe a hot bath to relax you and some time laying on the heating pad would help. I find these things to help somewhat when the pain is at it's worse. Sorry I don't have any great, earth-shattering answers, but I hope it helps you to know that many women out there suffer with this disease too. The best medicine I have found is the support of other women like me. Doesn't make the pain go away but sure helps my mental state! Feel free to email me any time you need a friend.

God Bless and lots of hugs!!! Amy Meyer

At Mon, 6 Jan 2003, Lori wrote: >
>Long story short, I have been in pain for years and was finally
>diagnosed with endo on Oct 18 2002 when I had a lap done. Lessions were
>removed and a cyst was removed from each of my ovaries. I am not sure
>what level endo I have my dr has not told me (I need to ask!) but she
>did say I had quite a bit and that it had been there for a long time. I
>was actually glad to here I had the disease after being told that
>nothing was wrong for so long. I was told it was my kidney stones
>acting up again and after surgery to find out it wasn't I was furious. I
>was told it was constitpation. Nope. Endoskeletol pain. Nope. The
>list goes on and on.
>
>I have been on b.c. pills since my surgery. Allese to being with which
>did no good. I still had the pain. I had the 3 worst periods of my
>life since my surgery. Finally my doctor switched me to low-ogestrel 2
>days ago and I have been throwing up ever since. The pain in my right
>side is so bad I would welcome surgery or even death.
>
>My question is what should I do? Are there any things out there that
>work? The pain is horrible, I am tired all the time and I can't enjoy a
>min. of my day. Any help or support would be wonderful.

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