ENDO Messages for December, 2002: Re: Endometriosis outside of Pelvic Region?????

Re: Endometriosis outside of Pelvic Region?????

From: Mindy (anonymous@obgyn.net)
Tue Dec 31 18:22:44 2002

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In reply to: Kristin: "Endometriosis outside of Pelvic Region?????"

Yes, it can spread to other areas as Kristy suggested and is rare. At this point it might be in your best interest to consult a specialist. I am concerned that you are dealing with an gyno that has never heard of Endo in other locations than the pelvic area. There are many out there....Dr. R in Bend Oregon is one. Your doctor can help rule out other problems that might be causing the pain you are having in the upper region of your body, but if nothing checks out, I would definitely pursue with a specialist.

http://www.endometriosistreatment.org/

I wish you well and painfree days.

Mindy :-)

At Tue, 31 Dec 2002, Kristin wrote: >
>Anyone here ever heard of or been diagnosed with Endometriosis outside of
>the pelvic region??
>
>I know it is quite rare...but how serious is it?? I have Stage IV Endo and
>when I had my last lap (#4) the Endo had spread to my upper chest cavity on
>my diaphragm, and a few other places.... My OB had never seen or heard of
>this before... I suffer from excruciating pain in my right shoulder and
>neck most of the time, to the point of not being able to function, including
>all of the other regular Endo symptoms; severe cramping, heavy bleeding,
>constipation, diarrhea, nausea, lower back and hip pain....etc. I'm kind
>of new to this forum...just mostly reading everyone else's messages. I'm
>not here to complain...just need someone to empathize with me. Any response
>would be appreciated :)

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In reply to: Kristin: "Endometriosis outside of Pelvic Region?????"

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