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Re: endometriosis and urinary problems

From: Angie (anonymous@obgyn.net)
Fri Dec 27 18:43:58 2002


Veronica,

Your problems sound similar to mine, including the swollen belly. I've often wondered if that were connected. Good luck to you. If I have any luck with my doctors in the next few weeks, I'll be back on to post. MaybeI'll have useful information.

--
Angie

At Fri, 27 Dec 2002, Veronica wrote: > >Angie and Holly, > >Hello. I have been having similar problems also with my urinary tract. >Although I had a complete hysterectomy in 1996 (everything removed), I >had my seventh surgery in June of this year for endometriosis in the >vaginal cuff and a left ovarian remnant. I was fine for the first >couple of months. At the end of August I started having severe pelvic >pain and pain around both sides of my kidneys and I have problems >voiding when I have to urinate which also feels like intense bladder >spasms. Plus my stomach has swollen three times its size. I saw the >doctor and was told that I had no infections and that it was probably >endometriosis again. I'm almost at my wits end. I take darvecets daily >for pain. Some days I can barely function. I have an appointment >scheduled to see a new doctor but that won't be until February. Thanks >for listening. > >-- >Veronica :) > >At Thu, 26 Dec 2002, holly wrote: >> >>the problems i have with my bladder are: >>cramping when i have to urinate >>frequent urination (especially at night- sometimes every 10 minutes) >>pain in my abdomen when i do urinate >>difficulty "starting a stream" (as my doctor calls it) >>when i do start to go, i only release a little >>even when i had my laparoscopy, i wasn't able to pee afterward. they >>strait-cathed me and 16 hours after the surgery sent me home with a >>foley catheter. got that removed the next day after i started peeing >>finally. >> >>hth >> >>At Thu, 26 Dec 2002, Angie wrote: >>> >>>What sorts of problems did you have with your bladder? If you don't mind >>>me asking. >>> >>>At Thu, 26 Dec 2002, holly wrote: >>>> >>>>i think it might be the endometriosis. i had lesions between my bladder >>>>and my uterus and have problems with my bladder. i don't get UTIs, but >>>>i have trouble relieving myself. talk to your doctor again. >>>> >>>>At Thu, 26 Dec 2002, Angie wrote: >>>>> >>>>>I have seen some similar postings on this site that have been helpful in >>>>>letting me know that I am not alone. Here is a little of my endo >>>>>history. >>>>> >>>>>I was first diagnosed with endo in 1997. I finished my first round of >>>>>lupron shots in spring 1998. Within six months, I was in excruitiating >>>>>pain. I thought the endo pain was back. Turned out I had a UTI, yeast >>>>>infection, bladder infection, kidney infection and stones —— yes, all at >>>>>the same time. Walking was difficult. >>>>> >>>>>Over the next few years, I began experiencing chronic kidney and bladder >>>>>infections and UTIs. I also was told that my right urinary tract >>>>>contained scar tissue but was told it was a congenital problem that >>>>>likely would not get worse. >>>>> >>>>>By spring 2001 things had become much worse. I had surgery for kidney >>>>>stones. The doctor went in but really couldn't do much because I had so >>>>>much scar tissue in my right urinary tract he couldn't dialate it. He >>>>>left a stent in for a week, went back in and no stone. Before the >>>>>surgery an IVP showed the right kidney was draining either very slowly >>>>>or not at all. I've since had more UTIs. >>>>> >>>>>In 2002 I again went through lupron shots. They have been done with >>>>>about four months. Now the feelings of UTIs and bladder abd kindey >>>>>infections are back. AS we speak, I'm having horrible spasms in my >>>>>bladder. This has been going on almost daily for about a week. Recent >>>>>tests show no infection. >>>>> >>>>>This past Friday I went to the ER for blood in my urine. (It was most >>>>>definatley visible to me.) The ER doctor suspected it was a stone, but >>>>>my pain was minimal at that point. More a feeling of pressure in my >>>>>kindey. >>>>> >>>>>I suspect my problems are connected to the endo. I've reached the end >>>>>of my rope with this. My doctors don't seem open to the idea. >>>>> >>>>>What does anyone else think??? >>>>> >>>>>-- >>>>>Angie >>>>> >>>>-- >>>>holly >>>>ttc for 7 years >>>>dx 2002 endometriosis >>>> >>>-- >>>Angie >>> >>-- >>holly >>ttc for 7 years >>dx 2002 endometriosis >>

--
Angie



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