Re: bladder troubles!!!!!is there any hope????
From: Megan (anonymous@obgyn.net)
Mon Nov 18 12:34:15 2002
Sarah,
Your doctor was wrong when he said that endo does not affect the
bladder. Many doctors feel that endo is just a gyn problem, but they do
not realize that it can affect other organs such as the bowels, lungs,
and (in one case) the brain. Therefore, it is very possible and very
well documented that endo can go into the bladder.
However, it is absolutely critical that you get Interstitial Cystitis
(IC) ruled out. IC looks and acts just like bladder endo, but it is a
completely different disease. In fact, it is VERY common for doctors to
often think that a woman has bladder endo and they end up having IC.
This is what happened to a friend of mine who is a nurse and always has
the best doctors. If her doctors kept saying she had bladder endo and
ended up having IC, I think IC can fool pretty much anyone. Anyway, the
way IC is ruled out is by doing a cysto with
hydrodistention. In other words, you are put under general anesthesia.
For more info about bladder endo and IC, check out the following links:
http://www.ichelp.org/
http://www.findarticles.com/cf_0/m0CYD/6_37/84393307/p1/article.jhtml?term=endometriosis
http://www.ichelp.org/whatisic/ICFactSheet.html
http://www.ic-network.com/
http://www.ichelp.org/FeatureArticles/MeetYourBladder.html
http://www.ichelp.org/whatisic/TheMostFAQ.html
http://www.ic-network.com/handbook/basics.html
--
Megan
Rohnert Park EA Support Group
The Endometriosis Association - http://www.killercramps.org
At Sun, 17 Nov 2002, anonymous@obgyn.net wrote:
>
>HI MEGAN, TO MY KNOWLEDGE ALL THE DOCTER DID WAS FREEZE ME, THEN
>PROCEEDED TO USE ABOUT FOUR DIFFERENT THINGS TO STRETCH THE URETHRA AND
>HE TOLD ME HE WAS USING A CURRENT OR SOMETHING TO THAT EFFECT TO
>STIMULATE THE MUSCLES?BEFORE HE STARTED HE TOLD ME THAT ENDO DOES NOT
>EFFECT THE BLADDER AND WOULD NOT LISTEN TO ME OR ANSWER MY QUESTIONS ,
>SO I WAS VERY FRUSTERATED AND AS BAD AS IT SOUNDS I REALLY AM NOT TO
>SURE OF WHAT EXACTLY HE DID.IT WAS ABOUT A 10 MINUTE PROCEDURE WHICH HE
>CLAIMED WOULD CURE ALL MY TROUBLES.WHAT IS HYDRODISTENSION?
> **SARAH**
>
>At Sun, 17 Nov 2002, Megan wrote:
>>
>>Sarah,
>>Quick question - when you had your cysto, was it done with
>>hydrodistention ??
>>Megan
>>Rohnert Park EA Support Group Leader and Founder
>>
>>The Endometriosis Association - http://www.killercramps.org
>>
>>At Sat, 16 Nov 2002, anonymous@obgyn.net wrote:
>>>
>>>hi i just wrote a really long message but then realized i had clicked on
>>>the bulletin board instead of the forum so it probably won't go
>>>threw.i'm 24 and have been suffering with endo since i was about 14.for
>>>the last 4 years i have had nonstop bladder trouble.i get this really
>>>intense constant burning sensation at the opening of the urethra or
>>>somewhere in that general area.i have the burning more often than
>>>not.the strange thing is it does not burn to go pee.i get tested for
>>>bladder infections about once a month.half the time they come back
>>>postitive and the other half not.also in the morning when i get up it's
>>>hard to go pee and then when i do i get sharp crampy pains.i had a
>>>cystoscopy done about 2 weeks ago and not more than 2 days later all my
>>>symptoms where back.i went to (supposedly)one of vancouver's best
>>>urologists.he told me that endo does not grow on or affect the bladder
>>>and told me to stop drinking coffee and alcohol(which i don't
>>>anyways)and to stop getting stressed out and all my problems would go
>>>away.how frusterating is that!!!i'm at home from work sick today and am
>>>feeling very helpless and frusterated.i can't afford to keep missing
>>>work.i guess i'm just really hoping to hear of someone else who has the
>>>same or simular syptoms.i'm starting to feel crazy and wish i could get
>>>some insite on this burning sensation.also wondering if anyone out there
>>>could suggest a good urologest in british columbia.sorry for all the
>>>complaining.take care.
>>> **sarah**
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