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Re: bladder troubles!!!!!is there any hope????

From: Megan (anonymous@obgyn.net)
Sun Nov 17 20:06:19 2002


Sarah, Quick question - when you had your cysto, was it done with hydrodistention ?? Megan Rohnert Park EA Support Group Leader and Founder

The Endometriosis Association - http://www.killercramps.org

At Sat, 16 Nov 2002, anonymous@obgyn.net wrote: >
>hi i just wrote a really long message but then realized i had clicked on
>the bulletin board instead of the forum so it probably won't go
>threw.i'm 24 and have been suffering with endo since i was about 14.for
>the last 4 years i have had nonstop bladder trouble.i get this really
>intense constant burning sensation at the opening of the urethra or
>somewhere in that general area.i have the burning more often than
>not.the strange thing is it does not burn to go pee.i get tested for
>bladder infections about once a month.half the time they come back
>postitive and the other half not.also in the morning when i get up it's
>hard to go pee and then when i do i get sharp crampy pains.i had a
>cystoscopy done about 2 weeks ago and not more than 2 days later all my
>symptoms where back.i went to (supposedly)one of vancouver's best
>urologists.he told me that endo does not grow on or affect the bladder
>and told me to stop drinking coffee and alcohol(which i don't
>anyways)and to stop getting stressed out and all my problems would go
>away.how frusterating is that!!!i'm at home from work sick today and am
>feeling very helpless and frusterated.i can't afford to keep missing
>work.i guess i'm just really hoping to hear of someone else who has the
>same or simular syptoms.i'm starting to feel crazy and wish i could get
>some insite on this burning sensation.also wondering if anyone out there
>could suggest a good urologest in british columbia.sorry for all the
>complaining.take care.
> **sarah**




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