ENDO Messages for November, 2002: Re: Are UTIs linked with Endo?

Re: Are UTIs linked with Endo?

From: Sybille (anonymous@obgyn.net)
Wed Nov 13 16:42:16 2002

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Previous message: noel: "my girlfriend has endo"
In reply to: Kim: "Are UTIs linked with Endo?"

Hi Kim,

Huge HUgs to you...... I have endo for 22 years now....yes it is sometimes hard to get on with it, especially, when you have been in good hands and have to look for a (or more)new doctor. I move country nearly 3 years ago....and where I am now...I am very concerned how to handle my disease here.....I haven't found support on medical side at all yet. Lucky for me....I still can go back, to my old doctor.(even when it's a 10 hour travel)..even when no insurance does pay for it, but this money is for my health and not something unnessecary. So I don't mind spending it (even when I hate the fact that I have to pay for two insurances with no claim possibility).

And your other question UTI's and endo....there are many reasons why endowomen are more likely to get UTI's than others. Even all the precaution doesn't help the factor, that the vagina (and usually the urethra ends in there)gets infected much easier and more frequent, than in healthy women. And Vaginal infects cause often Uti's secondary. The other thing is, that many endosufferers have trouble with their clearance. That means, that even when you drink much water (min 2l a day !) it often doesn't come out your system unobstructed or in full dialution....so you are more likely to get an infection. An other thing is....if you had one infection....the next one comes easier....for lots of reasons as well. There are lots of endowomen out there, suffer regular Uti's...... Hope that helps you a bit further....It probably won't give you any relieve, but I hope you will find someone who takes good care of you. That you might havn't to suffer these much infectios any more. Because there are several stabilizing therapies out there , which can help you. I will be no help in this direction for you...sorry, because I am on the other side of the world...so many things are different. But I hope you get some help in dealing with it.

Lots of Anglhugs Sybille

At Wed, 13 Nov 2002, Kim wrote: >
>I have had Endo for about ten years now (since I was 15) and have gone
>through the Lupron Depot, two Laparoscopys and now take BC all the time
>to stop periods. The pain seems to be ok for now but, it's starting to
>get worce again. I'm really glad I found this place.
>
>Anyhow, for the last two years I have had around 8 UTIs each year
>without a real cause. I'm such a clean person and have not done
>anything different! Before this I have never had one in my life! I also
>have not been able to find a good doctor since I had to go on state
>medical insurance. No one seems to know why I am having this problem. I
>just feel so worn out and start to cry everytime I feel one coming on.
>Sometimes I have to go to the ER because the UTIs come on so fast with
>such force I can't stand it. The doctor I had did not believe I was
>following the list he gave me about cleaning that area ect ect. My
>mother had taught me all those things and they were already set in stone
>in my head.
>
>I also feel like I'm never going to get rid of the endo and I know I
>need another Laparoscopy soon I'm sure but, I just don't have the money
>to go back to my old doctor...she was very good. I feel like I'm
>missing out/have missed out on a lot of stuff in life because of the
>pain ect. I'm also so scared to go under the knife again. I know it's
>pretty simple but, It won't be my old doctor that will do it this time
>and I really trusted her. I had been with her since I was 14 until I
>was 21.
>
>I would also like to know how long some of you have had endo. I know I
>have a weird case of it already...getting it so young. Has anyone else
>out there had it over ten years? Also, what do you take for the pain? I
>can no longer take Vicodin because I had gotten hooked on it. Nothing
>else seems to help. I also get a lot of lower back pain with my cramps
>that just kill me. Does anyone else get the same? Sometimes the pain is
>so bad that I have to go take a bath or shower almost until the hot
>water runs out and then wait for the water to heat up so I can go back
>in there.
>
>Sorry to just spill all this personal stuff out but, I'm just so fed up
>with this you know?

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Previous message: noel: "my girlfriend has endo"
In reply to: Kim: "Are UTIs linked with Endo?"

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