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Re: Been there done that....From: anonymous (anonymous@obgyn.net)Mon Nov 11 10:56:23 2002
At Thu, 7 Nov 2002, anonymous@obgyn.net wrote: > >At Thu, 7 Nov 2002, anonymous wrote: >> >>My name is KC, I have been on the AOL endo board for about a year. >> >>I was diagnosed with Endo via Lap October 30 2001. I thought I had a >>simple bladder infection because the pain was so weird and more so when >>I peed... I had an ultrasound and all that showed was a 2.2 cm or mm >>cyst which was hemorahagic (SP) but dr said it was nothing to worry >>about and told me that pain was in my head (like I've read some of you >>say.) I know my pain isn't in my head so I told her I wanted to see one >>of the Gyn's that she was raving about... I went and saw her the next >>week and she told me that I had endo. Plain and simple... My Mom, >>sister and Aunts have it as well. >> >>I have had 3 Laps, most recent was October 8 2002. Each and every time >>my Gyn >>found Endo some where "new." >>First Lap, like I said was on Oct 30, 2001 in which I learned that my >>right ovary was attached to the wall of my pelvis. All of my pain has >>been right sided. It was behind my uterus (cul-de-sac) as well. >>I went the Lupron route beginning on December 10 2001 and went through 4 >>months of injections ending on March 1, 2002 (I couldn't handle it >>anymore and it wasn't doing any good.) 2nd Lap on April 16, 2002 with >>excision of endo incuding removal of a very diseased uterosacral >>ligament. I was pain free for about a month and a half. Then it hit >>again. I was on continuous birth control but it did nothing. Went in >>for a 3rd Lap and Endo was found on my rectum. How wonderful, >>considering that my Aunt had Endo on her rectum so bad that she now has >>a colostomy bag (but it's NOT a colostomy it's something different). But >>her endo was actually invading her rectum, I just have a small spot. So >>now I'm back on Lupron as of October 16 and it's hitting me hard. I >>remember last year it hit me like this and I swore I wouldn't go on it >>again! >> >>So now that I've given you all my history can anyone tell me if they've >>had endo on their rectum and what are your symptoms??? >> >>Sorry this is so long but I wanted to get it all in... >> >>Thanks, >>KC > >Hi Kc. Ahh you poor thing I'M going through similar at the moment. ITs >not on my rectum. Its on my ligaments and right ovarie. Had 2nd lapro >5 months ago, the pian has just returned. The worst part is people are >like "Are you sure its the same pain" and im like MY GOD i knoe this >pain. I also have mine effecting my bladder around ovulation i pee non >stop and have like a chilling pain down my right side. I was so fed up >this morning, thinking i was going to have to start the ball rolling for >another operation. Is it posible to live with this pain, and not >continue to have operations? It is just so hard it make you feel so >miserable and helpless. I wuld have a ababy now and try that option but >my partner does not want to. That seems to make it worse i almost get >angry at thim for not wantting to and let me continue this cycle of >pain... anyway i havent answered any of your questions, just thought id >have a winge. Just letting you know i understand your pain. Leysa > >-- >leysa >leysajobrien@hotmail.com >
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