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Been there done that....

From: anonymous (anonymous@obgyn.net)
Thu Nov 7 16:59:26 2002


My name is KC, I have been on the AOL endo board for about a year.

I was diagnosed with Endo via Lap October 30 2001. I thought I had a simple bladder infection because the pain was so weird and more so when I peed... I had an ultrasound and all that showed was a 2.2 cm or mm cyst which was hemorahagic (SP) but dr said it was nothing to worry about and told me that pain was in my head (like I've read some of you say.) I know my pain isn't in my head so I told her I wanted to see one of the Gyn's that she was raving about... I went and saw her the next week and she told me that I had endo. Plain and simple... My Mom, sister and Aunts have it as well.

I have had 3 Laps, most recent was October 8 2002. Each and every time my Gyn found Endo some where "new." First Lap, like I said was on Oct 30, 2001 in which I learned that my right ovary was attached to the wall of my pelvis. All of my pain has been right sided. It was behind my uterus (cul-de-sac) as well. I went the Lupron route beginning on December 10 2001 and went through 4 months of injections ending on March 1, 2002 (I couldn't handle it anymore and it wasn't doing any good.) 2nd Lap on April 16, 2002 with excision of endo incuding removal of a very diseased uterosacral ligament. I was pain free for about a month and a half. Then it hit again. I was on continuous birth control but it did nothing. Went in for a 3rd Lap and Endo was found on my rectum. How wonderful, considering that my Aunt had Endo on her rectum so bad that she now has a colostomy bag (but it's NOT a colostomy it's something different). But her endo was actually invading her rectum, I just have a small spot. So now I'm back on Lupron as of October 16 and it's hitting me hard. I remember last year it hit me like this and I swore I wouldn't go on it again!

So now that I've given you all my history can anyone tell me if they've had endo on their rectum and what are your symptoms???

Sorry this is so long but I wanted to get it all in...

Thanks, KC




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