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What should I do next?From: anonymous (anonymous@obgyn.net)Thu Oct 31 19:30:11 2002
Hi, I am new to the forum. I am not sure what my next move should be, maybe someone in the forum has a suggestion. My history-I am a 37 yr old w/ 2 kids (5 & 8). About 3 yrs before my first child, I had sharp pain on my right side which was thought to be an ovarian cyst (through US and IVP). After 3 months of BC pills and horrendous pain and almost being addicted to pain meds, the doctor did a lap which found that I did not have an ovarian cyst but a cyst on the right broad ligament which ruptured during all the time he waited (I am not sure he believed me when I explained my level of pain) and left about a 2 inch hole which needed to be repaired. The OB/GYN swears I had no endo. Because my symptoms after lap remained and I had identical pains on the same days each month I saw a new doctor who said I definitely had the clinical picture of endo and he did not care what the other doctor saw, many times endo is atypical. I at least felt better that he believed there was a reason for my pain. I lived w/ the pain, had a child and of course my pain returned after the pregnancy. I waited and lived w/ the pain until I had my 2nd child 3 years later so as not to take the chance that a doctor would mess things up inside. The year after the delivery, I could not take it anymore and went to a reproductive endocrinologist who did a 2nd lap and found endometriosis and adhesions which he got rid of but also did the LUNA procedure (nerve ablation) for my severe menstrual pain. After this surgery, my pain did decrease (so that I could live on only Motrin and an occasional Tylenol w/codeine) for about 2 years. As the doctor told me, these nerves do grow back together and pain will return. Well...here I am 4 years later and the pain has absolutely returned for about the last year. Now, I have terrible ovulation pain which starts prior to and after I ovulate as well as a week of menstrual pain leading up to and including the first 2 days. Therefore, I am in pain 50% of the month. I always have my pain on my right side even with ultrasound proof that I am ovulating on the left. Yesterday, was the last straw. I had severe pain for 2 days and was up all night and knew that something had ruptured or was really wrong. Called the doctors office and they sent me for the usual Ultrasound which just showed fluid in the cul de sac. So of course, they feel nothing is terribly wrong, "your cyst probably ruptured and you can take pain pills to get through this". My choices as they always seem to be regardless of which doctor I am talking to is to go on Lupron which I do not want to do or have another surgery. I am interested in having surgery but I feel like I am once again going into it completely blind and w/o a prognosis--just "we'll see what's there when we look inside". Does anyone have info on specific tests or things that I should do before agreeing to another surgery? Should I use another reproductive endocrinologist to do the surgery since they are more familiar w/ endo or should I use some other type of doctor/surgeon? I have moved to a new state so I am not able to use the last specialist. I am sorry this is so long and drawn out but I am so frustrated and uncomfortable agreeing to surgery again. Thanks in advance.
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